In The Politics of Autism, I write about the everyday struggles facing autistic people and their families.
Rhiannon Evans at The Guardian:
There has been a huge shift in awareness around neurodiversity recently, with improved provision for children in schools and increased middle-age diagnosis and detection in women. Still, one group has remained underserved when it comes to support; adults over 60. A recent study estimated that 89-97% of autistic people over 60 are undiagnosed, leading experts in the field, such as Dr Louise Rutter (who last year co-authored a report on the subject for the British Psychological Society) to brand them a “neglected generation”.
The figures are for the UK, but it is likely that the American figures are similar.
First posted here in September:
Abstract:
Aging in autistic populations is a historically neglected but now rapidly advancing area of research. This narrative review provides a broad overview of the current state of the field of aging on the autism spectrum by synthesizing and critically appraising findings from across a range of research priorities identified by autistic people and other stakeholder groups. These include (a) the trajectory of core autistic features; (b) health profiles, biological aging, and mortality; (c) influential life experiences and life outcomes (including transition periods such as retirement and menopause and events such as trauma and periods of crisis); (d) cognitive function, aging, and dementia; and (e) quality of life and social support. Where possible, empirical research focusing on diagnosed autistic people is presented, but due to very high rates of underdiagnosis of autism in this demographic, trait-based research is also considered. Research specifically focusing on midlife (i.e., 40–64 years) and older age (i.e., 65 years and older) is presented where available, but due to a dearth of such research, lifespan studies (i.e., samples including middle-aged and older people, but not differentiating them) are also discussed. This review concludes by identifying future research priorities, as well as key conceptual issues that researchers interested in the intersection of aging and autism should consider for this emerging and rapidly advancing area of research.
