I-ACC Meets

 In The Politics of Autism, I discuss the Interagency Autism Coordinating Committee and research priorities.

RFK Jr. has stacked it with his own type of people.

Allison Parshall at Scientific American:

A “shadow committee” of autism researchers and science advocates met in the nation’s capital for the first time on Thursday.

Called the Independent Autism Coordinating Committee (I-ACC), the group rapidly came together as a response to Secretary of Health and Human Services Robert F. Kennedy, Jr., overhauling of the federal government’s Interagency Autism Coordinating Committee (IACC), which provides guidance on autism research. Kennedy’s 21 new appointees to the committee include several who have promoted a disproved connection between vaccines and autism and who have promoted non-evidence-based and potentially dangerous therapies for the condition.

...

The federal autism committee now has a “striking absence of scientific expertise,” said Craig Snyder, policy lead at the Autism Science Foundation, during the rival group’s meeting on Thursday. “It disproportionately represents the small subset of families who believe, contrary to scientific consensus, that vaccines cause autism while excluding the overwhelming majority of autistic individuals, families and advocates who support evidence-based science.”

The independent group plans to review autism science and recommend research priorities to improve the lives of autistic people—something that many of its members worry the federal committee will no longer prioritize.

 ...

.In 2019 the federal committee began to include a larger number of autistic people as members. Now the federal group has less representation from autistic people than before, and the independent group has only one autistic member. Neither group includes representatives of autism self-advocacy organizations.

“At present autistic people are losing ground on political representation,” says Ari Ne’eman, co-founder of the Autistic Self Advocacy Network and a health policy researcher at Harvard University. “I don’t think either [group] can be meaningfully said to represent our community at this moment.”

Shadow IACC

In The Politics of Autism, I discuss the Interagency Autism Coordinating Committee and research priorities.

RFK Jr. has stacked it with his own type of people.

Lena H. Sun at WP:

A group of prominent scientists launched an independent autism advisory panel Tuesday over fears that Health Secretary Robert F. Kennedy Jr. has politicized the key federal autism advisory board he oversees.

The shadow committee will focus on developing a coordinated scientific agenda for autism research and will function as a counterweight to the advisory board Kennedy reshaped in January by appointing new members. Many of those members have echoed his controversial views, including promoting debunked claims linking vaccines to autism and advocating for unproven treatments.

The new independent group will do more than speak out against misinformation, Alison Singer, president of the Autism Science Foundation and member of the group, said in a statement Tuesday. The group will create a research agenda that reflects the progress and promise of autism science and report annually on key research advances, including basic research on genes and cells, environmental causes, early detection, therapeutics and services.

The new panel, to be called the Independent Autism Coordinating Committee, includes experienced scientists and advocates who have funded and conducted autism research for many decades, including two past directors of the National Institute of Mental Health, Joshua Gordon and Tom Insel. It is set to hold its first meeting on March 19, the same day as the federal panel.

About the Coalition of Autism Scientists

In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread.    Examples include measles, COVID, flu, and polio.

A number of posts discussed Trump's support for the discredited notion.

 Another leading anti-vaxxer is presidential candidate Robert F. Kennedy, Jr.  He has repeatedly compared vaccine mandates to the Holocaust.  Rolling Stone and Salon retracted an RFK article linking vaccines to autism.  He is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.

He is now Trump's secretary of HHS. 

Tager-Flusberg, H. (2025), Debate: Standing up for science – how to combat misinformation in child mental health: protecting the integrity of autism research and practice in the United States. Child Adolesc Ment Health. https://doi.org/10.1111/camh.70058.  Abstract:

In 2025, the Coalition of Autism Scientists was formed to counter the misinformation and pseudoscience that was being advanced at the highest levels of the federal government in the United States. The background and history of how the Coalition was formed and its major activities, which include regular meetings, issuing public statements, and providing information and interviews to the media, are described. The importance of engaging in active advocacy in support of autism science is discussed along with some examples of the Coalition's impact. Given the direction that politics is going, sowing greater dissent between science and the public, continued vigilance in support of the highest quality research is critical if we are to meet the urgent needs of autistic people and their families.

Nature Medicine: Autistic People Deserve Science-Based Policy

 A number of posts discussed Trump's support for discredited notions about autism. The Sept 22 White House news conference was a firehose of lies. Last month, he posted an unfounded warning about Tylenol.  RFK then tiptoed away from the idea that it definitely causes autism.

From an editorial in Nature Medicine:

Recent public discourse in the USA has been marred by the propagation of claims about the causes of autism that do not reflect current scientific consensus and disregard an extensive research body indicating that there is no single root cause of autism. US Secretary of Health and Human Services Robert F. Kennedy Jr. has made identifying the causes of autism a focal point1 of his tenure. While understanding the origins of autism is important, the approach must be grounded in rigorous, unbiased science and informed by the lived experiences of people with autism and their families. So far, this standard does not seem to have been met.

Within the first 10 months of the current administration, senior officials have advanced a series of assertions linking autism to childhood vaccines, prenatal acetaminophen2 (Tylenol) use, and even circumcision3. These claims reflect a broader pattern of science communication that prioritizes ideology over evidence, often relying on selective data interpretation4 while disregarding the broader scientific literature. This approach marginalizes experts, advocacy organizations, and — most importantly — people with autism and their families.

The consequences of such rhetoric were immediate and far-reaching. A national poll conducted shortly after a press conference in which Secretary Kennedy and President Trump alleged a causal link between prenatal Tylenol use and autism found that 77% of respondents had been exposed to the claim5. Alarmingly, 60% expressed uncertainty about its validity. This confusion is not benign. Acetaminophen is considered the safest choice of analgesic and antipyretic for use during pregnancy; systematically discouraging its use could endanger maternal and fetal health.

Moreover, the language employed in these public statements risks perpetuating stigma. Framing autism as a condition to be ‘cured’ or attributing blame to parents6 reinforces harmful stereotypes and undermines the dignity of people with autism. It is imperative that public communication about autism be accurate, respectful and reflective of neurodevelopmental diversity.

While understanding autism’s causes remains a legitimate scientific goal, it must not eclipse the urgent need to improve the quality of life for people with autism across their lifespan. The US National Institutes of Health’s Autism Data Science Initiative, launched earlier this year with over $50 million in funding across 13 projects, focuses mainly on early-life exposures and the perceived rise in autism prevalence. Although such efforts are valuable, they must be complemented by research into aging, comorbidities and service delivery. Notably, the 2020 Interagency Autism Coordinating Committee report found that less than 13% of autism research funding was allocated to lifespan issues, services and support — an imbalance that must be urgently addressed.

Equally important is the inclusion of people with autism in shaping the research agenda. Participatory research models that prioritize co-creation and community engagement are more likely to yield findings that translate into meaningful improvements in care and policy. Yet, as of this writing, the Interagency Autism Coordinating Committee — the only federal advisory body with representation from the autism community — has not publicly announced a convening since the start of the current administration. This absence raises concerns about the inclusivity and legitimacy of recent policy and funding decisions.

Responsibility for restoring scientific integrity in autism research and policy must be shared. Advocacy organizations such as the Autistic Self Advocacy Network, the Autism Society and the Academic Autism Spectrum Partnership in Research and Education have taken commendable steps to counter misinformation and promote community-engaged research. 

References

1. Seitz, A. PBS News https://go.nature.com/49E5GKv (10 April 2025).
2. Hamilton, J. Noguchi, Y. & Greenfieldboyce, N. NPR https://go.nature.com/4qJlEch (22 September 2025).
3. Beaumont, T. & Ungar, L. PBS News https://go.nature.com/3LAfWcE (10 October 2025).
4. FactCheck.org. Annenberg Public Policy Center https://go.nature.com/47nNCTu (3 February 2025).
5. Shutt, J. The Highland County Press https://go.nature.com/4oGeTGn (23 October 2025).
6. Kim, J. NPR https://go.nature.com/4nGKZRB (26 September 2025).

 

RFK Jr. is a Disaster for Science

 In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread.    Examples include measles, COVID, flu, and polio.  A top antivaxxer is HHS Secretary RFK Jr. He is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.

Brandy Zadrozny at MSNBC:

A shooting outside the Centers for Disease Control and Prevention’s Atlanta headquarters on Friday left a police officer dead and officials and scientists at the nation’s premier public health agency shaken. Many are now demanding answers from their health secretary, Robert F. Kennedy Jr., who has long vilified the CDC and contributed to a culture of misinformation that they say makes them targets.

... 

CDC Director Susan Monarez convened an online all-hands meeting of the agency division that focuses on vaccines — the National Center for Immunization and Respiratory Diseases.

...

One employee described the shooting as “the culmination of ongoing animosity toward CDC and the work that we do — not a one-off incident.” Another named Kennedy in a comment that drew dozens of supportive emoji reactions, writing: “We need them to stop fanning the flames of hatred against us, stop spreading misinformation. We will not be safe until they stop their attacks against us.”    

For years, Kennedy attacked the CDC. In videos from anti-vaccine conferences between 2013 and 2019, he likened the agency’s vaccine work to “fascism” and “child abuse,” called it a “cesspool of corruption” and said it was filled with profiteers. At a 2013 conference, when asked about why the CDC had failed to acknowledge the autism epidemic (which he falsely linked to vaccines), Kennedy said it was like the Holocaust. On at least two occasions, Kennedy has apologized for comparing agencies, officials and public health measures to the Holocaust. During the pandemic, Kennedy repeatedly framed the CDC and other HHS agencies as “corrupt,” falsely suggested Covid-19 was a “bioweapon,” and lied about the dangers of Covid vaccines, calling them “the deadliest vaccine ever made.”

Maya Goldman at AXios:

Health Secretary Robert F. Kennedy Jr.'s decision to cut federal funding for mRNA vaccine research is the latest in a series of moves that have the potential to crush future medical breakthroughs and accelerate a brain drain.

...

Health Secretary Robert F. Kennedy Jr.'s decision to cut federal funding for mRNA vaccine research is the latest in a series of moves that have the potential to crush future medical breakthroughs and accelerate a brain drain. 

• Kennedy is working to implement massive staff cuts at HHS, reduce funding for research labs' overhead costs and end National Institutes of Health grants for a wide swath of projects.
• The cuts, along with the broader Trump administration's immigration restrictions, has already started to steer promising international scientific talent away from the country.
• Kennedy also is reportedly considering overhauling the U.S. Preventive Services Task Force, whose independent experts establish care and coverage guidelines to account for advances in medical treatments and new disease trends. Its past work included recommending beginning mammograms at 40, which has been credited with saving thousands of lives.

MAHA: Marketing Anti-Science Harms America

In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread.    Examples include measles, COVID, flu, and polio.

A number of posts discussed Trump's support for the discredited notion.

 Another leading anti-vaxxer is Robert F. Kennedy, Jr.  He has repeatedly compared vaccine mandates to the Holocaust.  Rolling Stone and Salon retracted an RFK article linking vaccines to autism.  He is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.

He is now Trump's Secretary of HHS. 

Andrew Gumbel at The Observer:

Kennedy’s anti-science, slash-and-burn approach is particularly frustrating to autism campaigners, who had hoped he was sincere about answering the question of what causes the condition – answers that might go a long way towards steering many parents and adult sufferers away from conspiracy theories.

But what those advocates have seen is a gutting of research funds. Instead of deepening work into genetic causes of autism, Kennedy has indulged his obsession with one thing scientists are now quite confident does not cause autism: childhood vaccination.

“[Kennedy] acts as if there’s a single environmental toxin that nobody who has been studying autism for the past 25 years has been able to find,” said Alison Singer of the Autism Science Foundation. “We are in fact making really good progress in finding the causes of autism, and yet the administration that says it wants to find the causes is decimating the scientific infrastructure of university-based research.”

Discouraging the vaccination of pregnant women was counterproductive, Singer argued, because research indicates that rubella, flu or Covid during pregnancy could be aggravating factors for autism. Proposing a registry of Americans with autism without explaining its purpose, as Kennedy’s department did in April, risked alarming people and deterring parents from seeking help for their autistic children, she added.

“RFK Jr is a data denier,” Singer argued. “There’s this hypothesis he’s had for 20 years that vaccines cause autism and he disregards anything that contradicts it. You can’t be so entrenched in your own beliefs that you can’t see the data in front of you.”

In going against that data, Kennedy has also politicised the country’s public health – a process Trump himself began during the Covid pandemic by floating untested remedies like injecting disinfectant or “hit[ting] the body with … very powerful light” and conflating medical expertise with the elitism of what he calls the “radical left”.

Now Kennedy is justifying many of his most radical policy shifts as a response to “waste, administrative bloat and duplication” created by the Democrats under President Biden – the implication being that attacking the experts and attacking Democrats amount to the same thing.

MAHA AI BS

In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread.    Examples include measles, COVID, flu, and polio.

A number of posts discussed Trump's support for the discredited notion.

 Another leading anti-vaxxer is presidential candidate Robert F. Kennedy, Jr.  He has repeatedly compared vaccine mandates to the Holocaust.  Rolling Stone and Salon retracted an RFK article linking vaccines to autism.  He is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.

He is now Trump's Secretary of HHS.

Caitlin Gilbert, Emily Wright, Fenit Nirappil and Lauren Weber at WP:

The White House’s “Make America Healthy Again” report, which issued a dire warning about the forces responsible for Americans’ declining life expectancy, bears hallmarks of the use of artificial intelligence in its citations. That appears to have garbled citations and invented studies that underpin the report’s conclusions.

Trump administration officials have been repeatedly revising and updating the report since Thursday as news outlets, beginning with NOTUS, have highlighted the discrepancies and evidence of nonexistent research.

Department of Health and Human Services spokesman Andrew Nixon said that “minor citation and formatting errors have been corrected, but the substance of the MAHA report remains the same — a historic and transformative assessment by the federal government to understand the chronic disease epidemic afflicting our nation’s children.” .

...

• The referenced report is real. But the inclusion of "oaicite," a marker of the use of OpenAI, in the URL offers a definitive sign that artificial intelligence was used to collect research.
•  This dead URL was live as recently as 2017, according to archived versions of the site. AI experts said chatbots can produce outdated links in response to queries because they were trained using older material.

  Margaret Manto and Emily Kennard at NOTUS:

The Trump administration’s clean up of the “Make America Healthy Again” Commission’s hallmark and error-riddled report is opening new questions about how the report’s authors drew some of its sweeping conclusions about the state of Americans’ health.

At least 18 of the original report’s citations have been edited or completely swapped out for new references since NOTUS first revealed the errors Thursday morning. While some of the original report’s inconsistencies have been changed, a few of the new updated citations continue to misinterpret scientific studies.

Genetic Research

 In The Politics of Autism, I discuss various ideas about what causes the condition. Genetics plays an important role.  “I’m told that there was a 20-to-1 research ratio for genetic causes over the past 20 years,” HHS Secretary Robert F. Kennedy Jr. recently said. “I believe that was because they did not want to look at the environmental exposure because they were scared. So I don’t think we should be funding that genetic work anymore.”

Dylan Scott at Vox:

If Kennedy were serious about moving autism science forward, he would be talking more about genetics, not dismissing them. That’s because genetics is where all of the exciting drug development is currently happening.

A biotech firm called Jaguar Gene Therapy has received FDA approval to conduct the first clinical trial of a gene therapy for autism, focused on SHANK3. The treatment, developed in part by one of Buxbaum’s colleagues, is a one-time injection that would replace a mutated or missing SHANK3 gene with a functional one. The hope is that the therapy would improve speech and other symptoms among people with high-needs autism who have also been diagnosed with a rare chromosomal deletion disorder called Phelan-McDermid syndrome; many people with this condition also have Autism spectrum disorder.

The trial will begin this year with a few infant patients, 2 years old and younger, who have been diagnosed with autism. Jaguar eventually aims to test the therapy on adults over 18 with autism in the future. Patients are supposed to start enrolling this year in the trial, which is focused on first establishing the treatment’s safety; if it proves safe, another round of trials would start to rigorously evaluate its effectiveness.

“This is the stuff that three or four years ago sounded like science fiction,” Singer said. “The conversation has really changed from Is this possible? to What are the best methods to do it? And that’s based on genetics.”

Researchers at Mount Sinai have also experimented with delivering lithium to patients and seeing if it improves their SHANK3 function. Other gene therapies targeting other genes are in earlier stages of development. Some investigators are experimenting with CRISPR technology, the revolutionary new platform for gene editing, to target the problematic genes that correspond to the onset of autism.

But these scientists fear that their work could be slowed by Kennedy’s insistence on hunting for environmental toxins, if federal dollars are instead shifted into his new project. They are already trying to subsist amid deep budget cuts across the many funding streams that support the institutions where they work.

MAHA Fakery

 In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread.    Examples include measles, COVID, flu, and polio.

A number of posts discussed Trump's support for the discredited notion.

 Another leading anti-vaxxer is presidential candidate Robert F. Kennedy, Jr.  He has repeatedly compared vaccine mandates to the Holocaust.  Rolling Stone and Salon retracted an RFK article linking vaccines to autism.  He is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.

He is now Trump's Secretary of HHS.

Emily Kennard and Margaret Manto at NOTUS:

Health Secretary Robert F. Kennedy Jr. says his “Make America Healthy Again” Commission report harnesses “gold-standard” science, citing more than 500 studies and other sources to back up its claims. Those citations, though, are rife with errors, from broken links to misstated conclusions.

Seven of the cited sources don’t appear to exist at all.

Epidemiologist Katherine Keyes is listed in the MAHA report as the first author of a study on anxiety in adolescents. When NOTUS reached out to her this week, she was surprised to hear of the citation. She does study mental health and substance use, she said. But she didn’t write the paper listed.

“The paper cited is not a real paper that I or my colleagues were involved with,” Keyes told NOTUS via email. “We’ve certainly done research on this topic, but did not publish a paper in JAMA Pediatrics on this topic with that co-author group, or with that title.”

It’s not clear that anyone wrote the study cited in the MAHA report. The citation refers to a study titled, “Changes in mental health and substance abuse among US adolescents during the COVID-19 pandemic,” along with a nonfunctional link to the study’s digital object identifier. While the citation claims that the study appeared in the 12th issue of the 176th edition of the journal JAMA Pediatrics, that issue didn’t include a study with that title.

As the Trump administration cuts research funding for federal health agencies and academic institutions and rejects the scientific consensus on issues like vFromaccines and gender-affirming care, the issues with its much-heralded MAHA report could indicate lessening concern for scientific accuracy at the highest levels of the federal government.

From ASAN:

The Autistic Self Advocacy Network condemns the release of the Make America Healthy Again (MAHA) Commission’s most recent report. The Commission was created to try and lower the rate of “autism and other chronic health conditions” in the United States. Lowering the rate of autism is not possible given that autism is a hereditary developmental disability.

Much of what the report talks about is not actually a problem. It presumes that a condition getting diagnosed more often, or more people getting care for it, must mean that the condition is getting more common or getting worse. The truth is that in many cases there have been improvements to the accessibility of health care, as well as improved criteria for diagnosis. For example, the increased prevalence of autism diagnosis is thanks to better access to screening and improved understanding of autism, especially for people of color, women, and LGBTQI+ autistics. Doing a better job of identifying a condition and helping more people get supports for it is a good thing, not proof of an “epidemic.” ASAN remains committed to debunking disinformation and scare tactics from the MAHA Commission.

 

 

 

RFK the Unifier

In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread.    Examples include measles, COVID, flu, and polio.

A number of posts discussed Trump's support for the discredited notion.

 Another leading anti-vaxxer is presidential candidate Robert F. Kennedy, Jr.  He has repeatedly compared vaccine mandates to the Holocaust.  Rolling Stone and Salon retracted an RFK article linking vaccines to autism.  He is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.

He is now Trump's secretary of HHS. This week, he lied about autism research, saying that HHS has not laid off scientists.

At Scientific American, Allison Parshall talks with Helen Tager-Flusberg, an autism researcher and a professor emerita at Boston University.,who organized a coalition of scientists to push back against RFK. The Coalition of Autism Scientists now has 258 members and is still growing.

Kennedy’s approach seems to step right on that fissure in the autism community. Is there a way to prevent this rift from developing further?

I don't think I have the answer to that. It’s a big question in the community because people are looking at the agendas in very different ways. But I will say one thing. I have been really impressed, over the past couple of weeks, since beginning this coalition, with how [autistic] folks who are self-advocates have joined the coalition. I think the one thing that unifies us is a belief in the importance of scientific research. Maybe we define the scope of that science in different ways, but that’s always true. That’s something that we all hold to.

And I think we all, at this moment, believe that the direction that’s been described so far by the administration is not the way we should go. We should not be opening up the question of vaccines again. We should be very cautious about using “registries” and make sure the research that’s done is ethical and maintains the confidentiality of individuals in those databases. We all agree about that.

We also all agree that, so far, we’re not hearing from the administration that they have a very deep understanding of autism. They have failed to engage most of us, whether scientists or advocates or nonprofit organizations. None of us have been involved in these discussions. So I think we actually have a moment in time where there is some agreement, and I think it behooves the administration to think about why that is and whether they need to change their course.

RFK Lies to Congress

In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread.    Examples include measles, COVID, flu, and polio.

A number of posts discussed Trump's support for the discredited notion.

 Another leading anti-vaxxer is presidential candidate Robert F. Kennedy, Jr.  He has repeatedly compared vaccine mandates to the Holocaust.  Rolling Stone and Salon retracted an RFK article linking vaccines to autism.  He is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.

He is now Trump's secretary of HHS. Yesterday, he testified before the Senate HELP Committee and lied through his teeth.

Sheryl Gay Stolberg at NYT:

Some of Mr. Kennedy’s statements did not comport with the facts. He told the Senate health committee that no current vaccines except those for Covid had been tested against placebo. That prompted the committee’s Republican chairman, Senator Bill Cassidy of Louisiana, who had left the room, to return to correct him.

“The secretary made the statement that no vaccines except Covid have been evaluated against placebo,” Mr. Cassidy said. “That’s not true. A rotavirus, measles and HPV vaccines have been.”

Mr. Kennedy’s assertion that he has “not fired any working scientists” flies in the face of reality. Hundreds of scientists from the National Institutes of Health, the Centers for Disease Control and Prevention and the Food and Drug Administration have lost their jobs as part of his plan to overhaul the Department of Health and Human Services.

The Trump administration has also frozen or canceled scores of research grants at academic institutions, many of them from the National Institutes of Health, which falls under Mr. Kennedy’s purview. Columbia University alone has experienced significant cuts to more than 300 federal grants, many of them for medical research.

As a previous post noted, one of the scientists he fired was Cara Pugliese, chief of the Autism, Attention-Deficit/Hyperactivity Disorder, and Externalizing Disorders Interventions Research program.

Coalition of Autism Scientists

In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread.    Examples include measles, COVID, flu, and polio.

A number of posts discussed Trump's support for the discredited notion.

 Another leading anti-vaxxer is presidential candidate Robert F. Kennedy, Jr.  He has repeatedly compared vaccine mandates to the Holocaust.  Rolling Stone and Salon retracted an RFK article linking vaccines to autism.  He is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.

He is now Trump's secretary of HHS. 

In light of the Trump administration's dishonesty and threats to privacy, plans for an autism registry are most disturbing.  Because Trump and RFK Jr. have a long history of lying about autism, we have to assume bad faith.

A release from the Coalition of Autism Scientists:

The newly formed Coalition of Autism Scientists today issued a statement in response to remarks and actions taken by Robert F. Kennedy, Jr., Secretary of the U.S. Department of Health and Human Services (HHS) regarding the study of autism. Led by Helen Tager-Flusberg, Ph.D., Professor Emerita, Department of Psychological & Brain Sciences, Director of the Center for Autism Research, Boston University, this growing group of experienced research scientists from across the United States came together to reject Mr. Kennedy’s false narrative about the incidence and causes of autism, instead urging HHS to focus on established, research approaches that already inform the global understanding of autism.

Dr. Tager-Flusberg said, “The Coalition of Autism Scientists came together to demand respect for autism research. Instead of focusing on questions that have been asked and answered, limited and valuable research dollars must focus on what we don’t yet know about autism so that we can meet the urgent needs of autism individuals and their families.”

Full Statement from the Coalition of Autism Scientists

“For more than three decades, the National Institutes of Health has invested substantial resources into research to advance knowledge about autism spectrum disorder. As scientists dedicated to this venture, we have witnessed many remarkable achievements in our field revealing the complexity of autism. These include: discovery of hundreds of genes associated with autism; identification of environmental factors that may interact with genetic predisposition; knowledge about differences in brain architecture and function; documenting the significant prevalence rates across the globe; divergent presentations and highly variable outcomes; early development of brain and behavioral signs in infants; and the development and evaluation of innovative interventions that improve autism symptoms and enhance quality of life for individuals and their families.

Considering these advances, we were deeply troubled to hear the Secretary of Health & Human Services dismiss past research, downplay the causal role of genes, and portray autistic people in ways that counter our experiences and demean their value to society. We are unified in our commitment to conduct the highest quality research and build mutual respect and trust with the public. This trust is seriously threatened by the Secretary’s interpretation of the rising prevalence rates and his plans to carry out a study that will deliver findings within a few months on an environmental toxin that causes autism. We fully support genuine advances in the field, so we urge the Secretary to register the planned study protocol, provide time for public comment, include independent data analysts, and make the data available to the scientific community. Following these widely accepted scientific practices that ensure research integrity, will allow the planned study to build on the strong foundation of prior research and help guide future work to unravel the causes of this complex disorder and lead to new approaches in how we support individuals and their families.”

A full list of signatories is available at this link: Coalition of Autism Scientists Signatories List

About the Coalition of Autism Scientists

The Coalition of Autism Scientists formed in 2025 and is comprised of the leading autism researchers across the United States. It is led by Helen Tager-Flusberg, Ph.D., Professor Emerita, Department of Psychological & Brain Sciences, Director of the Center for Autism Research, Boston University. Shortly, the Coalition of Autism Scientists will launch a website at https://coalitionofautismscientists.org