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Showing posts with label Twitter. Show all posts
Showing posts with label Twitter. Show all posts

Monday, February 12, 2024

Perceived Experts

 In The Politics of Autism, I write:

Many articles and blog posts arguing for the vaccine-autism link have the trappings of genuine academic research: tables, graphs, citations, and scientific jargon. Some of the authors have credentials such as M.D. or Ph.D. degrees. None of these things is a guarantee of scientific value, as the history of science is full of crackpot theories (e.g., AIDS denialism) that are the heavily-footnoted products of people with letters after their names. But most people will not be able to spot the scientific weaknesses of such work. Outside of academia, few understand concepts such as peer review. Jordynn Jack describes one dubious article that appeared in a non-peer-reviewed publication: “Regardless of the scientific validity of the article, though, the writers perform the writing style quite effectively. It would be difficult for the layperson to distinguish this article from any other scientific research paper, especially if one did not investigate the nature of the journal … or of the scientific response to the article.”
Mallory J Harris, Ryan Murtfeldt, Shufan Wang, Erin A Mordecai, Jevin D West, Perceived experts are prevalent and influential within an antivaccine community on Twitter, PNAS Nexus, Volume 3, Issue 2, February 2024, pgae007, https://doi.org/10.1093/pnasnexus/pgae007  Abstract:
Perceived experts (i.e. medical professionals and biomedical scientists) are trusted sources of medical information who are especially effective at encouraging vaccine uptake. The role of perceived experts acting as potential antivaccine influencers has not been characterized systematically. We describe the prevalence and importance of antivaccine perceived experts by constructing a coengagement network of 7,720 accounts based on a Twitter data set containing over 4.2 million posts from April 2021. The coengagement network primarily broke into two large communities that differed in their stance toward COVID-19 vaccines, and misinformation was predominantly shared by the antivaccine community. Perceived experts had a sizable presence across the coengagement network, including within the antivaccine community where they were 9.8% of individual, English-language users. Perceived experts within the antivaccine community shared low-quality (misinformation) sources at similar rates and academic sources at higher rates compared to perceived nonexperts in that community. Perceived experts occupied important network positions as central antivaccine users and bridges between the antivaccine and provaccine communities. Using propensity score matching, we found that perceived expertise brought an influence boost, as perceived experts were significantly more likely to receive likes and retweets in both the antivaccine and provaccine communities. There was no significant difference in the magnitude of the influence boost for perceived experts between the two communities. Social media platforms, scientific communications, and biomedical organizations may focus on more systemic interventions to reduce the impact of perceived experts in spreading antivaccine misinformation.

From the article:

Information consumers often use markers of credibility to assess different sources (25, 26). Specifically, prestige bias describes a heuristic where one preferentially learns from individuals who present signals associated with higher status (e.g. educational and professional credentials) (27–29). Importantly, prestige-biased learning relies on signifiers of expertise that may or may not be accurate or correspond with actual competence in a given domain (25, 30). Therefore, we will refer to perceived experts to denote individuals whose profiles contain signals that have been shown experimentally to increase the likelihood that an individual is viewed as an expert on COVID-19 vaccines (31), although credentials may be misrepresented or misunderstood (user profiles may be deceptive or ambiguous, audiences may not understand the domain specificity of expertise, and platform design may impair assessments of expertise if partial profile information is displayed alongside posts). We focus on the understudied role of perceived experts as potential antivaccine influencers who accrue influence through prestige bias (4, 13). Medical professionals, biomedical scientists, and organizations are trusted sources of medical information who may be especially effective at persuading people to get vaccinated and correcting misconceptions about disease and vaccines (29, 32–35), suggesting that prestige bias may apply to vaccination decisions, including for COVID-19 vaccines (36, 37).

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In addition to signaling expertise in their profiles, perceived experts may behave like biomedical experts by making scientific arguments and sharing scientific links but also propagate misinformation by sharing unreliable sources. Antivaccine films frequently utilize medical imagery and emphasize the scientific authority of perceived experts who appear in the films (42, 43, 48). Although vaccine opponents reject scientific consensus, many still value the brand of science and engage with peer reviewed literature (49). Scientific articles are routinely shared by Twitter users who oppose vaccines and other public health measures (e.g. masks), but sources may be presented in a selective or misleading manner (40, 49–53). At the same time, misinformation claims from sources that often fail fact checks (i.e. low-quality sources) are pervasive within antivaccine communities, where they may exacerbate vaccine hesitancy (6, 18, 54, 55).

 

Monday, June 12, 2023

Antivaxxer Back on Twitter

Autism parents are highly vulnerable to pitches for quack "cures."

In The Politics of Autism, I write:

The conventional wisdom is that any kind of treatment is likely to be less effective as the child gets older, so parents of autistic children usually believe that they are working against the clock. They will not be satisfied with the ambiguities surrounding ABA, nor will they want to wait for some future research finding that might slightly increase its effectiveness. They want results now. Because there are no scientifically-validated drugs for the core symptoms of autism, they look outside the boundaries of mainstream medicine and FDA approval. Studies have found that anywhere from 28 to 54 percent of autistic children receive “complementary and alternative medicine” (CAM), and these numbers probably understate CAM usage.
Larry Cook, a prominent anti-vax activist who was banned from numerous social media platforms including Facebook for spreading QAnon conspiracy theories, has returned to Twitter, where he is using his verified status to sell expensive “vaccine cures.”

A longtime anti-vaxxer, Cook is a former naturopath who resigned as executive director of the California Naturopathic Doctors Association in 2016 to “educate as many parents and others as possible about the dangers of vaccination.”

Among Cook’s many inflammatory claims, he has said vaccines kill babies and children. “Not only can any vaccine given at any age kill your child,” Cook wrote in one ad, “but if this unthinkable tragedy does occur, doctors will dismiss it as ‘Sudden Infant Death Syndrome’ (SIDS)”

Here what he was peddling:

Biomedical treatment seeks to uncover these root problems associated with Autism symptoms and to then treat these autistic symptoms with biomedical treatments that treat the many underlying causes of Autism symptoms. Some of these treatments may include things that will help with detoxification, such as chelation therapy, mild hyperbaric oxygen therapy, B12 injections and glutathione injections. Other treatments may include nutritional supplementation, Vitamin D3 supplementation and the adoption of a gluten free casein free diet. The use of digestive enzymes, probiotics, anti-fungal drugs and the adoption of the Body Ecology Diet (fermented foods) may be employed. And there are many, many other medically valid treatments that will help treat the root causes of Autism and Autism symptoms so that the body can start to heal itself and repair the damage that’s been done.

 

Monday, November 28, 2022

Antivax Twitter

 In The Politics of Autism, I look at the discredited notion that vaccines cause autism.  TwitterFacebook, and other social media platforms have helped spread this dangerous myth.

Melody Schreiber at The Guardian:

As the troubled social media platform Twitter rolled out a paid verification system and laid off thousands of content moderators, health misinformation accounts on the social network began pushing their messages to a wider audience than ever.

Under Elon Musk’s new direction for Twitter, several anti-vaccine accounts with tens of thousands of followers are now verified by paying $7.99 a month for Twitter Blue.

Social media sites have long struggled with misleading information and content moderation.

“There’s always been misinformation on the platforms,” said Sarah Barry, a vaccine advocate. Social media companies “only respond when something gets reported on, but they’re not actually proactively watching these groups”, she said.
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Before the change in leadership, Twitter was working to remove some accounts that spread anti-vaccine disinformation.

But “now it looks like Twitter’s giving these accounts some legitimacy”, said Peter Hotez, a vaccine scientist and dean of tropical medicine at Baylor College of Medicine.

“It looks like now they’re going to move in the wrong direction, and actually help promote groups that are touting anti-vaccine, anti-science disinformation.”



Sunday, November 21, 2021

Autism Blogs

 In The Politics of Autism, I examine the role of social media in the development of the issue.  Social media can spread vaccine disinformation, but they can also provide autistic people and their families with a way to connect with one another and to press for government action.

Social media is far from a perfect solution to the social barriers we experience. It comes with its own pitfalls and frustrations. But while most people could rattle off a list of negatives, it feels like a little-known secret that social media is the central hub of a thriving autistic community, in some ways uniquely suited to people who want to connect but do so in an atypical way. While social media isn’t for everyone, it is a valid and meaningful form of socializing that should be discussed, encouraged and supported.

Thursday, March 25, 2021

The Disinformation Dozen

In The Politics of Autism, I analyze the discredited notion that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread  And among those diseases could be COVID-19.

Antivaxxers are sometimes violent, often abusive, and always wrong

The Center for Countering Digital Hate has a new report titled "The Disinformation Dozen;Why platforms must act on twelve leading online anti-vaxxers."

From the executive summary:

1. The Disinformation Dozen are twelve anti-vaxxers who play leading roles in spreading digital misinformation about Covid vaccines. They were selected because they have large numbers of followers, produce high volumes of anti-vaccine content or have seen rapid growth of their social media accounts in the last two months.

2. Analysis of a sample of anti-vaccine content that was shared or posted on Facebook and Twitter a total of 812,000 times between 1 February and 16 March 2021 shows that 65 percent of anti-vaccine content is attributable to the Disinformation Dozen.

3. Despite repeatedly violating Facebook, Instagram and Twitter’s terms of service agreements, nine of the Disinformation Dozen remain on all three platforms, while just three have been comprehensively removed from just one platform.

They are:

1. Joseph Mercola

2. Robert F. Kennedy, Jr.

3. Ty and Charlene Bollinger

4. Sherri Tenpenny

5. Rizza Islam

6. Rashid Buttar

7. Erin Elizabeth

8. Sayer Ji

9. Kelly Brogan

10. Christiane Northrup

11. Ben Tapper

12. Kevin Jenkins