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Showing posts with label blogs. Show all posts
Showing posts with label blogs. Show all posts

Wednesday, January 2, 2013

Parents, Facebook, and Community

The Connecticut tragedy has prompted members of the community to join together and push back on the speculation that autism had anything to do with it.

At The Connor Chronicles, Flannery Sullivan writes:
After the horrific events that took place at Sandy Hook Elementary, news reports and articles were seen everywhere, and a great many, in their haste to report something, indicated that the shooter was autistic, specifically, a person with Asperger’s. That reporting set off a nightmarish chain of events in which ill-informed people, believing that autism could be attributed to planned violence, made hateful comments and put up Facebook pages calling for extermination of autistics.
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Others started sharing pictures of their loved ones, with meaningful descriptions. Someone had an idea to put all the pictures in one place. Tim Tucker, from Both Hands and a Flashlight, had a FB page that was empty, waiting to be used. He offered up the page, as well as worked to create a website, and Autism Shines was born.
We couldn’t believe how quickly it grew. Although it was created just a couple of days before Christmas, the FB page acquired 2,000 fans in less than 48 hours, and amassed a few hundred photos. The website is now operational, and is gaining in popularity as well.
At Parents, a post by Lisa Quinones-Fontanez, a mom who blogs over at AutismWonderland.
Last Saturday when I woke up and checked my Facebook, I noticed my feed was full of friends (mostly autism parents) sharing all these beautiful photos of kids, teenagers, adults. All the photos had some kind of personal message about the person in the photo. All the photos were shared from a page called Autism Shines - a page created by autism parents.
In reading the messages, I was so moved. Not only by the messages on the photos but by the amount of shares, likes and comments of support. One mother showed the page to her son and he said, “I used to think I was the only autistic kid on earth. Then I realized there were others like me. I think there are some kids who don’t know they aren’t alone, but now they will know.”
In their effort to “show the world all the positive attributes of autism,” The Autism Shines Facebook Page welcomes anyone to “upload your photo of someone you love with autism, or yourself, and caption it with something great about them.”
When I uploaded my photo of Norrin, the page had about 200 ‘likes.’ By the end of the same day – it had a little more than 1500 and the number keeps growing (it’s close to 3000 now). This is the power of community. This is autism awareness at its best.

Saturday, May 7, 2011

Geier, Blogging, & Neurodiversity

If, like me, you don't know much about autism, let me explain where the cosmic justice comes in: One form of the wide-ranging developmental disorder, on the high-functioning, high-verbal end of it, is Asperger's syndrome, which among other things is characterized by a tendency to obsess on a single subject.

Geier happened to become that subject for Kathleen Seidel.

"I'm the kind of person once my brain kicks in, I just go hog wild," says Seidel, a blogger who lives in New Hampshire. "For me, it's like putting together a big puzzle."

Seidel has a college-aged child who was diagnosed with Asperger's, and considers herself on the spectrum as well. With a master's in library science, she tends to meticulously research her obsessions and, after seeing references to Geier's work on some autism-related websites, started to investigate him about five years ago.

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Seidel's investigation resulted in a 16-part takedown of the Geiers on her blog, neurodiversity.com, that was widely circulated and drew renewed attention this week when the news hit that Maryland suspended his medical license.
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For Seidel, the suspension of Geier's license — he has the right to an appeals process, starting with a hearing before the board on Wednesday — offers some vindication. She's tangled, at least through the media, with Geier and others who have dismissed her work, saying she's not a doctor.

No, she's simply part of the "Aspie" community. And indeed, even by phone, you see why interacting with them can be both engaging and somewhat tiring. Seidel speaks in whole paragraphs — footnotes even, if you can imagine that in an entirely verbal exchange — and calls back a couple of times to make what were already good points better.

"I'm grateful," she says of the Maryland board's action. "It's not just me out there saying this is awful. It's not just me, a blogger. The professionals have paid attention, a whole table-full of doctors putting their intellect to work."


Wednesday, November 24, 2010