In The Politics of Autism, I write:
The conventional wisdom is that any kind of treatment is likely to be less effective as the child gets older, so parents of autistic children usually believe that they are working against the clock. They will not be satisfied with the ambiguities surrounding ABA, nor will they want to wait for some future research finding that might slightly increase its effectiveness. They want results now. Because there are no scientifically-validated drugs for the core symptoms of autism, they look outside the boundaries of mainstream medicine and FDA approval. Studies have found that anywhere from 28 to 54 percent of autistic children receive “complementary and alternative medicine” (CAM), and these numbers probably understate CAM usage.
A lot of people in RFK Jr's MAHA orbit are making a lot of money from dubious "treatments."
Autistic children as young as 18 months old are being injected with human stem cells derived from umbilical cords in unapproved, unproven and potentially harmful “treatments” that scientists warn are proliferating across the US under the active encouragement of the US health secretary, Robert F Kennedy Jr.
Clinics in Florida, Texas and other states are selling what they bill as “regenerative medicine” to families with autistic children who have intensive care needs. Parents who have taken their children through the process talked about their hopes and fears for a therapy that appears to be gaining ground in the US.
The procedure, which can involve the child being sedated with ketamine before receiving intravenous doses of millions of stem cells, costs up to $20,000 for each treatment. Families are often advised to return for regular top-ups.
Profoundly stressed parents are being wooed to the clinics with promises that a high-dose infusion of umbilical cord stem cells can lead to dramatic improvements in their children’s ability to speak, socialise, or avoid aggressive or self-harming behaviour. Yet there is no scientific evidence that the procedure works – the most comprehensive clinical trial staged so far, a placebo experiment conducted by Duke University, found insignificant benefits for most of the 180 children tested.
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In his 16 months as the secretary of the Department of Health and Human Services within the Trump administration, Kennedy has undercut established scientific endeavors. He has fired thousands of federal health officials, dismissed longstanding scientific advisers, defunded $31m in autism-related research and attempted to shrink the recommended list of childhood vaccinations.
At the same time, largely unnoticed, he has given his backing to alternative health providers moving to fill the gap. Kennedy appeared by video link at the first two annual summits held in San Diego by Autism Health, a leading advocate of stem cell infusions for autistic kids.
At the summit last year, he told the audience that “your issue is no longer on the fringe”. At this year’s gathering in April, he promised to “create opportunities that extend across a lifetime” and to work with the stem cell providers “to drive solutions together”.
