The Politics of Autism includes an extensive discussion of insurance and Medicaid services for adults with intellectual and developmental disabilities. Home and Community-Based Services (HCBS) are particularly important.
Autism Speaks is urging action after Governor Brian Kemp directed the state agency to implement only a fraction of the waiver expansion approved by the legislature, limiting progress on Georgia’s growing waitlist for disability services.sharing how Medicaid services impact them.
More than 8,000 Georgians with autism or other intellectual or developmental disabilities (I/DD) are waiting for home- and community-based services (HCBS), which help people live at home, access therapies, build skills, and participate fully in their communities. This year, following strong advocacy from families and individuals across the state, the legislature approved a budget allowing 900 individuals to move off the wait list for services. However, Governor Kemp is directing the state agency to use funds for just 100.
“For individuals with autism, access to home- and community-based services is a lifeline,” said David Sitcovsky, Vice President of Advocacy for Autism Speaks. “The legislature put forward a plan to begin addressing the waitlist for these services, but the Governor’s decision to scale back support will have lasting consequences for families across Georgia.”
Medicaid waiver programs such as Georgia’s NOW/COMP waivers are the primary pathway for individuals with autism to access essential services, including behavioral therapies, daily living supports, employment services, and respite care for families. These community-based services can also help prevent more costly outcomes, including crisis response, institutional care, emergency treatment, and caregiver burnout.
Autism Speaks is grateful to Senator Blake Tillery, Senator Ben Watson, Rep. Matt Hatchett, and Rep. Katie Dempsey for championing additional waiver slots in this year’s budget. We are committed to supporting their continued leadership and urge state leaders to build on the legislature’s proposal by identifying opportunities to increase waiver capacity before the next full budget cycle and making this a top priority in the next legislative session.
The state has identified 1,217 individuals who are in critical need of a waiver, and a recent statewide study showed that increases of up to 2,400 slots for three years would be needed to fully address and keep up with demonstrated need. “The Georgia legislature has already recognized both the scale of the need and a path forward,” Sitcovsky added. “It is critical that leaders act with urgency to build on that foundation so fewer families are left waiting year after year for services they urgently need.”
While Governor Kemp’s directive represents a setback, Autism Speaks remains committed to working with state leaders to ensure that Georgia makes meaningful progress toward reducing its waiver wait list. We stand united with other advocates to elevate this issue and invite Georgians affected by autism to join us in this work by
