In The Politics of Autism, I discuss the day-to-day challenges facing autistic people and their families. According to the Social Security Administration: "Many parents and caretakers of children with disabilities lose work hours and income because of their children’s care needs. Supplemental Security Income (SSI) provides monthly financial support to low-income families with children who have developmental and behavioral disabilities. This includes ASD – and physical impairments."
Now, President Donald Trump’s administration is poised to penalize people ... simply for living in the same home as their families, according to four federal officials, internal emails and a federal regulatory listing. The administration is working on a rule change that would deduct the value of a disabled adult’s bedroom from their SSI allotment, even if the family members they live with are poor enough to qualify for food stamps. This would mean slashing the benefits of some of the most low-income SSI recipients by up to a third — about $330 a month in Burton’s case — or ending their support altogether.
The effort to cut SSI for families who also rely on food stamps, also known as the Supplemental Nutrition Assistance Program, or SNAP, was initiated by top White House and Department of Government Efficiency officials last year, multiple Social Security officials said. It marks a second attempt by the Trump administration to quietly but dramatically downsize disability benefit programs overseen by the Social Security Administration, despite those programs’ strict eligibility standards and minimal instances of fraud. White House Budget Director Russell Vought and Social Security Commissioner Frank Bisignano abandoned a different proposed regulation involving disability payments last year after ProPublica and other news outlets reported on the harm that the plan would cause to hundreds of thousands of largely blue-collar workers in red states. (The disability programs are administered by the Social Security Administration but separate from the retirement program for which the agency is named. The Trump administration has promised not to cut Social Security retirement payments.)
The likely SSI cut will affect not just younger adults with disabilities such as Down syndrome and severe autism who are still living at home with their low-income parents, but also older people with health or financial problems who have had to move in with their adult children on tight budgets. All told, as many as 400,000 poor and disabled people and indigent older people across the United States could have their support cut or eliminated, according to a ProPublica analysis of actuarial figures from the Social Security Administration.
