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Saturday, April 4, 2020

Survey on Impact of COVID-19

In The Politics of Autism, I discuss the day-to-day challenges facing autistic people and their families. Those challenges get far more intense during disasters.  And coronavirus is proving to be the biggest disaster of all. 

A release from SPARK:
When COVID-19 arrived in New York, Dr. Wendy Chung, principal investigator of the SPARK study and a physician in New York City, knew that this was a singular moment in time. She wanted to understand how the pandemic was affecting families with autism across the country — in real time — and then share what she found with the community. She sent SPARK study participants a quick but important survey. SPARK, the largest study of autism families in the United States, was designed to allow for this kind of rapid data collection and sharing of information.

To learn how COVID-19 is affecting the autism community, on March 20, SPARK launched a massive online survey to almost 70,000 families, and within two weeks, received responses from over 8,000. The results show that many families are coming up with innovative and successful strategies to navigate therapies, education, and daily life, whereas others are struggling to handle the new challenges.

SPARK will share findings from a similar survey that was sent on March 30 to adults who have autism.
Anyone interested in learning more about the findings from the survey that was sent to families can download the attached infographic.
To learn more about SPARK or to join online, please visit Enrollment is open to anyone living in the U.S. with a professional diagnosis of autism.
An infographic:

Impact of COVID-19 on Families and Children with Autism Enrolled in SPARK Infographic