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Wednesday, April 22, 2015

National Autism Indicators Report

In The Politics of Autism (forthcoming later in 2015 from Rowman and Littlefield), I discuss the need for better information about autistic adolescents and adults.

A press release from Drexel Univerisity:
Autism does not end when children reach adulthood—yet most public awareness, public policy and research about autism focus on the needs of children. Families, service providers, community leaders and policymakers still know too little about the experiences and outcomes of young people on the autism spectrum as they enter their adult lives. What are their experiences with transition planning, living arrangements, social participation, employment, postsecondary education, health and mental health, safety and other domains?
Answers to these and other critical questions, addressing life outcomes beyond clinical interventions, are the focus of a report issued today from Drexel University’s A.J. Drexel Autism Institute, from its Life Course Outcomes Research Program. The “National Autism Indicators Report: Transition into Young Adulthood” is a comprehensive report (available free online) that presents new findings about a wide range of experiences and outcomes of youth on the autism spectrum between high school and their early 20s, including new safety and risk indicators for young adults with autism. The report describes the indicators now available and serves as a call to action to fill the remaining large gaps in knowledge.
“When it comes to understanding how well our nation is helping youth affected by autism, our situation is like driving a car through the fog with no dashboard,” said Paul Shattuck, PhD, leader of the Life Course Outcomes Research Program and an associate professor at Drexel. “We know we’re moving, but we do not have many indicators to tell us how fast we are going, whether we’re getting close to our goals, or what kind of mileage we are getting from the resources fueling our trip.”