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Sunday, May 1, 2011


The Los Angeles Times highlights a medical intervention, building the story around Chase Brown, a young man who has made recent progress in his struggle with Fragile X:
Minocycline, the medication Chase has been taking for almost eight months, is one of several drugs that might correct — even reverse — many of the brain perturbations of fragile X and several other developmental disorders, including autism.

The medications are still far from proven: Large-scale trials may take several years to complete. But if they live up to their promise without dangerous side effects, they could accomplish what no medication has been able to: cure a genetically based intellectual disability.
Great caution is necessary. A pilot study of the use of minocycline for treating regressive autism found negligible clinical improvements.

The article also touches on neurodiversity:
Not all parents hailed this "ray of hope." Reacting to the news on a blog called Contrarian, Jenn Power, a Canadian mother of twin boys with Down syndrome, echoed the views of many who have been active in promoting the rights of those with intellectual disabilities.

"They do not need a needle in their brain to make them more functional, to help them find their car keys," she wrote. "What they need is a society that values what they have to offer."