Wednesday, August 18, 2010

Divisions

Divisions within the autism community have been evident lately. Autism Speaks backs the New York mandate bill. Some groups do not. From The Age of Autism:

Fifteen New York-based autism advocacy groups and parents of children with autism today called on Governor David Paterson to veto the autism insurance bill sponsored by incumbent State Senator Neil Breslin. A bill that the groups say will deny insurance coverage and treatment for people suffering from autism spectrum disorders.

The bill would shift early intervention reimbursements costs from the insurers back to the counties and taxpayers. "S7000-B is a step backwards, not a step forward, in insurance coverage for Autism,” said Kathy Eiss, president of the Western New York Chapter of the Autism Society of America.”

“Insurance Chairman Neil Breslin’s bill does not provide insurance coverage for people who suffer from autism,” said Michael Smith, chairman and northeast regional director of the Foundation for Autism Information and Research. “Breslin’s bill actually does more harm than good because it discriminates against people who suffer from autism and makes it nearly impossible for them to get treatment prescribed by their doctors.”

Also on the same blog, Katie Wright comments on the July IACC meeting:

The day began with a lengthy lecture by Michael Ganz, PhD about the high cost of autism.Guess what autism is hugely expensive! Don’t we already know this? There was a heated Q & A between Ganz and Ari Ne’man regarding whether this information would be used to identify ASD fetuses prenatally for abortion purposes. In fairness to Ganz, I don’t think this subject was on his radar screen, but the issue is important for various reasons. Autism is not like Down syndrome. Autism is a wildly heterogeneous disorder. 95% of ASD kids have no chromosomal abnormalities. This crazy idea that we will be able to prescreen fetuses for ASD is asinine. Would doctors be screening for babies for dairy allergies, or for sub optimal immune systems or babies especially sensitive to environmental pollutants? Pursuing such research would be a colossal waste of money and time.
Video of the IACC meeting is here.