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Saturday, April 11, 2026

Removing Protections

In The Politics of Autism, I write:

The conventional wisdom is that any kind of treatment is likely to be less effective as the child gets older, so parents of autistic children usually believe that they are working against the clock. They will not be satisfied with the ambiguities surrounding ABA, nor will they want to wait for some future research finding that might slightly increase its effectiveness. They want results now. Because there are no scientifically-validated drugs for the core symptoms of autism, they look outside the boundaries of mainstream medicine and FDA approval. Studies have found that anywhere from 28 to 54 percent of autistic children receive “complementary and alternative medicine” (CAM), and these numbers probably understate CAM usage.

A lot of people in RFK Jr's MAHA orbit are making a lot of money from supplements

Bottema-Beutel, K. (2026). When Ableism Supplants Evidence: Federal Autism Guidance in the United States. Autism, 0(0).  https://doi.org/10.1177/13623613261439928
The US government has also removed protections that were previously in place to prevent harm to autistic people. In February of 2026, the US Food and Drug Administration (FDA) removed a warning about disproven autism “remedies”, including chelation therapies, chlorine dioxide (i.e. bleach) treatments, raw camel milk, and hyperbaric oxygen therapies (O’Matz, 2026). In the 1990s, by Bernard Rimland, a US-based psychologist and parent of an autistic son, promoted therapies involving adjustment of the biological environment (including vitamin regimens and other, more invasive approaches such as chelation therapy and gluten/casein-free diets). Although these therapies had no or minimal research evidence, he convinced parents they were worth trying because any possibility for reducing autism “symptoms” meant the intervention was worth any potential harms, which he considered unlikely (Shattock, 2006). This of course was not true— primary harms to autistic children could and did happen with biogenic therapies, including death (Sinha et al., 2006). On a now defunct US FDA consumer updates webpage available via the Wayback Machine Internet Archive, the agency (under a previous administration) shared the potential harms of many of these therapies. For example, regarding bleach cures marketed as Miracle Mineral Solution (MMS) they stated, “FDA has received reports of consumers who say they experienced nausea, severe vomiting and life-threatening low blood pressure after drinking the MMS and citrus juice mixture” (United States Federal Drug Administration [USFDA], 2014). Secondary harms, such as wasted caregiver time and resources, and reduced motivation to access more efficacious interventions, are also likely when therapies without research support are promoted by people in positions of power. No reliable evidence of their effectiveness has ever been produced, and other international sources of guidance continue to warn families against these therapies (e.g. Raising Children Network, 2026).

Friday, April 10, 2026

1,714 Measles Cases

  In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread   Examples include measlesCOVID, flu, and polio.  A top antivaxxer is HHS Secretary RFK JrHe is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.


As of April 9, 2026, 1,714 confirmed* measles cases were reported in the United States in 2026. Among these, 1,704 measles cases were reported by 33 jurisdictions: Alaska, Arizona, California, Colorado, Florida, Georgia, Idaho, Illinois, Kentucky, Maine, Massachusetts, Michigan, Minnesota, Missouri, Montana, Nebraska, New Mexico, New York City, New York State, North Carolina, North Dakota, Ohio, Oklahoma, Oregon, Pennsylvania, South Carolina, South Dakota, Texas, Utah, Vermont, Virginia, Washington, and Wisconsin. A total of 10 measles cases were reported among international visitors to the United States.

There have been 17 new outbreaks** reported in 2026, and 94% of confirmed cases (1,609 of 1,714) are outbreak-associated (377 from outbreaks starting in 2026 and 1,232 from outbreaks that started in 2025).

Thursday, April 9, 2026

RFK Antivax Update


SOPHIE GARDNER and KELLY HOOPER  at POLITICO report that RFK Jr. is plotting a new way to stack the Advisory Committee on Immunization Practices with antivaxxers
Nearly a year ago, Kennedy fired all the ACIP members and replaced them with his own selections, including many who shared his own skeptical view of vaccines. But District Court Judge Brian Murphy ruled that HHS ran afoul of longstanding procedures governing the committee’s membership and focus, including those outlined in its charter.

On Monday, the administration filed a document in the Federal Register signifying its intent to renew the ACIP’s charter, which expired on April 1 and governs the committee’s work. The full charter, which must be renewed every two years, is expected to be published in a federal database next week.

The renewal notice contained language that seemed to signal that HHS will seek a broader cohort of experts — not just those with deep vaccine expertise.

The renewal notice calls for a “balance of specialty areas,” which include “biostatistics,” “consumer issues” and the “state and local health department perspective.” The now-expired 2024 charter called for a narrower focus on vaccine knowledge and expertise.

Key context: The new language comes after Informed Consent Action Network’s Aaron Siri, a vaccine injury lawyer who’s also worked as Kennedy’s personal attorney, urged Kennedy to make a variety of changes to the charter.

That revision, Siri and colleagues wrote on behalf of ICAN, an anti-vaccine advocacy group, should broaden the language around what expertise members should have.

“If [Kennedy] decides to not just wait out this court ruling, there’s some thoughts that he might just reconstitute a new ACIP committee and make sure he dots his I’s, but you’re saying he can change what I’s he needs to dot and what T’s he needs to cross,” said Del Bigtree, founder of Informed Consent Action Network, in a conversation with Siri on his podcast “The HighWire.”

Richard Hughes, an attorney for the public health groups that sued over the ACIP’s reconstitution, said in an email this week that any attempt “to gamify the charter to avoid the legal consequences of the stays” could be challenged.

“Those behind the document are laying the groundwork to file a charter with significant revisions to the scope and membership of ACIP,” he wrote. “The purposes are likely two-fold — attempting to create the appearance of conformity to legal challenges while laying the groundwork for furthering an anti-vaccine agenda.”

Tuesday, April 7, 2026

RFK Jr. and Leucovorin

 number oposts discussed Trump's support for discredited notions about autism A September news conference was a firehose of lies.

Dr. Paul Offit:

Supporters of leucovorin point to a study that showed that the drug was effective and safe. On January 28, 2026, the journal that published that study retracted it because of “errors in results and concerns with the statistical analyses.” On March 10, 2026, the FDA backed away from its broad claims of efficacy of leucovorin stating that it would only work in that rare child who had a defect in the FOLR1 gene. For that reason, groups like the American Academy of Pediatrics (AAP), the American Psychiatric Association, the Society for Developmental and Behavioral Pediatrics, the Autism Science Foundation, and several major pediatric healthcare centers don’t recommend leucovorin as a treatment for autism. “The reason the AAP is not broadly recommending leucovorin is because we know that autistic children deserve the same level of evidence to support interventions as anyone else,” said Dr. Kristin Sohl. Once again, RFK Jr. was wrong. And, once again, he failed to apologize for misleading parents.

For many parents, autism can be financially burdensome and emotionally draining. Nonetheless, physicians who are still willing to prescribe leucovorin charge as much as $1,500 for an initial visit. There is nothing more sinister than people who offer false hope to those desperate to do something, anything to help their children. Robert F. Kennedy Jr. continues to use children with autism as a prop to further his anti-vaccine agenda. For that, this opportunist and interloper should be roundly condemned.

Monday, April 6, 2026

Special Ed in CA


John Fensterwald at EdSource:
Special education: The percentage of students with disabilities has risen from 13% in 2018-19 to 15% in 2023-24, even as overall enrollment has declined. Newsom is proposing to add $500 million next year to equalize state special education funding among districts, but the overall trend has not favored districts. The federal share of total special education funding in California, never close to the 40% share that Congress envisioned 50 years ago when passing the federal special education mandate, has fallen steadily over the past decade, as has the state’s share of dedicated funding.

Districts will continue to be responsible for the shortfall. Districts’ share of special education costs has risen from 51% in 2014 to 63% last year, according to School Services of California, a statewide consulting company, and higher in some small districts.

Placer County Office of Education Superintendent Gayle Garbolino-Mojica said that unexpected special education costs have forced three of her districts onto the state’s financial watch list. Preschoolers are coming to school with serious special needs — autism, multiple disabilities, behavioral problems — “in numbers not seen before,” she said.

...

Because of Proposition 98’s funding guarantee, TK-12 and community colleges will continue to receive 40% of the state’s general revenue, yet districts collectively will receive fewer dollars as their enrollments drop. The unallotted difference, euphemistically called a “declining enrollment dividend,” could grow to $7.5 billion annually, providing a pot of discretionary funding for the Legislature and governor. How to spend it could prove one of the more contentious decisions in the coming years. Among the options:...Increasing the state’s share of special education expenses, benefiting all districts;

Sunday, April 5, 2026

2027 Budget

 In The Politics of Autism, I write about social servicesspecial education, and the Individuals with Disabilities Education Act (IDEA). 

Julia Metraux at Mother Jones:
President Donald Trump released his budget proposal for the fiscal year 2027. Surprisingly, given the cuts that would be necessary to fund the $1.5 trillion the Trump administration is asking for military spending, the budget also included over $500 million more funding for the Individuals with Disabilities Education Act, for a total of over $16 billion. But disability experts are wary of other aspects of what the Office of Management and Budget head Russell Vought, Project 2025’s architect, put forward. Vought wrote in the proposal that the budget “continues the Department of Education’s path to elimination, returning control of education back to America’s families.”

...

The budget recommends removing funding specifically designated for parent information centers, which help equip parents with information and resources they need to advocate for their kids with disabilities, as well as technical assistance for schools. This funding would instead come out of each state’s IDEA budget. Multiple experts I spoke with expressed concerns that this will lead to these parent programs not getting the funding they need.

... 
The Trump administration tried the same move last year, but Congress, in a bipartisan fashion, rejected this change to the budget for parent information centers. “Advocates for students and families will call on Congress to do so again,” said Stephanie Smith Lee, former director of the Department of Education’s Office of Special Education Programs during the George W. Bush administration.

Last year, there was also an attempt to put funding for preschool for kids with disabilities in the states through consolidated grants. Though that was similarly rejected, it is again in the budget bill for fiscal year 2027.

...

Disability education is, of course, far from perfect. The federal government has already not followed through on a commitment to fund 40 percent of the cost of IEPs. The new budget proposal says that it will reduce “paperwork burdens on special educators so they can focus their time on serving students.”

But "paperwork burden" is code for the evidence that parents need if they go to due process.

See the Education Department report. 

Saturday, April 4, 2026

RFK v. Autistic People

In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread   Examples include measlesCOVID, flu, and polio.  A top antivaxxer is HHS Secretary RFK JrHe is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.

David Rivera at The Hill:

Who can forget when Kennedy, along with Trump, promoted the falsehood that Tylenol usage during pregnancy can cause autism? That lie, which has been repudiated by a vast body of research, spread rapidly to the point that about one-third of Americans believe it possible that Tylenol causes autism, according to one survey from the Kaiser Family Foundation. There is no doubt in my mind that this had to do with Kennedy and Trump.

None of Kennedy’s inquiries into autism are good-faith in reality. Not once has Kennedy asked me or any other autistic person for input on autism policy. Inviting us to have a voice at the table is not difficult. Plenty of autistic Americans are eager to share their views on how to make public policy more neurodiversity-affirming.

Kennedy’s false characterization of autism as a “disease” or an “injury” caused by vaccines hurts public perception of autistic people. Since Kennedy is the nation’s top health official, it is inevitable that many people will take his statements seriously and spread them to others.

The autistic community has made tremendous progress in the last decade, but so much progress has unfortunately been reversed thanks to people like Kennedy. I just hope we can make up our progress as quickly as Kennedy is reversing it.
David Rivera is president and founder of Mentoring Autistic Minds.

Friday, April 3, 2026

1,671 Measles Cases This Year


From CDC:
As of April 2, 2026, 1,671 confirmed* measles cases were reported in the United States in 2026. Among these, 1,661 measles cases were reported by 33 jurisdictions: Alaska, Arizona, California, Colorado, Florida, Georgia, Idaho, Illinois, Kentucky, Maine, Massachusetts, Michigan, Minnesota, Missouri, Montana, Nebraska, New Mexico, New York City, New York State, North Carolina, North Dakota, Ohio, Oklahoma, Oregon, Pennsylvania, South Carolina, South Dakota, Texas, Utah, Vermont, Virginia, Washington, and Wisconsin. A total of 10 measles cases were reported among international visitors to the United States.

There have been 17 new outbreaks** reported in 2026, and 94% of confirmed cases (1,570 of 1,671) are outbreak-associated (374 from outbreaks starting in 2026 and 1,196 from outbreaks that started in 2025).

Wednesday, April 1, 2026

988, Crisis Counselors, and Autistic People

In The Politics of Autism, I write about the many challenges facing people on the spectrum.  Among many other things, they are at high risk for suicide. (In July, the United States transitioned from 10-digit National Suicide Prevention Lifeline to 988 – an easy-to-remember three-digit number for 24/7 crisis care. "

Corinne Purtill at LAT:

Free, largely confidential and available 24 hours a day via call, text or online chat, the 988 Lifeline — formerly the National Suicide Prevention Lifeline — is among the most accessible and effective suicide prevention tools in the U.S.
But there are challenges for autistic people, who may process information slowly or misunderstand what the crisis counselor is saying.
“Autistic people are misunderstood and have difficulty conveying what they’re going through in a way that’s productive,” said Lisa Morgan, founder and co-chair of the Autism and Suicide Prevention Workgroup, a research collective dedicated to the issue. “The crisis counselors try to help, but end up kind of just landing wrong.”

...

Morgan, who is herself autistic, and her research partner Brenna Maddox, a clinical psychologist and co-chair of the workgroup, set out to help the 988 system do just that.

In 2023, they published a guide to help crisis workers assess whether the person they are talking to could be on the autism spectrum. It also offered specific conversation strategies that could improve the call: asking if the person has any special interests; asking clear, short, direct questions; allowing ample time for the person to respond; and being open to the caller’s own suggestions for what works for them. The final page of the guide is a single sheet of tips that crisis workers can print out and hang by their desk.

“An autistic individual may say that spinning quarters is a good distraction technique for them,” reads one tip. “Even if that sounds unusual to the crisis center worker, it is still a valid and acceptable answer.”

The following year, they published a detailed guide for autistic adults on what to expect when contacting 988. This includes the likelihood of a wait time (the 988 number connects to a network of more than 200 individual call centers around the U.S. and it can take a few minutes to find an available counselor) and how to sign off on a call or text chat. Earlier this year, the workgroup released a version for autistic youth and their caregivers.

Then last year, they achieved a goal long in the works: direct training for 988 counselors. Morgan and Maddox conducted three one-hour webinars for Vibrant that covered the fundamentals of autism, autism-specific suicide warning signs and support strategies for autistic people in crisis.

 

Monday, March 30, 2026

Autism, Genetics, and Ancestry

  In The Politics of Autism, I discuss various ideas about what causes the conditionGenetics plays an important role

From Mount Sinai Hospital:

A new study, co-led by researchers at the Icahn School of Medicine at Mount Sinai and published March 30 in Nature Medicine, demonstrates that genes associated with autism risk are largely the same across people of different ancestries. The findings, based on one of the largest genomic studies of Latin American individuals to date, provide strong evidence that the genetic architecture of autism is consistent across diverse populations. They underscore the importance of expanding genetic research beyond individuals of European ancestry.

Over the past decade, scientists have identified numerous rare genetic variants that confer substantial risk for autism and other neurodevelopmental disorders. However, most of these discoveries were made in cohorts composed predominantly of individuals of European ancestry, leaving open the question of whether autism's genetic underpinnings differ across populations. This knowledge gap has contributed to disparities in genetic testing, including higher rates of inconclusive results among non-European individuals due to limited reference data.

To address this issue, the research team analyzed exome and genome sequencing data from more than 15,000 Latin American individuals across North, Central, and South America, including approximately 4,700 individuals diagnosed with autism. Latin American populations represent the largest recent mixed-ancestry group globally, with heritage that frequently includes Indigenous American, West African, and European origins. This rich genetic diversity provides a powerful opportunity to refine gene-disease associations, which can improve health outcomes for all populations.

The study examined more than 18,000 genes for enrichment of rare, deleterious coding variants—genetic changes that can have immediate and profound clinical implications for diagnosis, treatment, and family counseling.

Consistent with prior research, rare, deleterious variants in highly conserved genes—genes that remain similar across species and populations over long periods of time—were disproportionately observed in individuals with autism. Researchers identified 35 genes significantly associated with autism in the Latin American cohort. These genes showed extensive overlap with those previously identified in genome-wide studies of individuals of European ancestry. The findings also provide support for several recently identified "emerging" autism-associated genes.

"Our results indicate that the core genetic architecture of autism is shared across ancestries," said study senior author Joseph D. Buxbaum, Ph.D., Director of the Seaver Autism Center for Research and Treatment at Mount Sinai. "This suggests that the biology underlying autism is universal and reinforces the importance of ensuring that diverse populations are represented in genetic research."

Sunday, March 29, 2026

Autism Depictions and Autistic People


White, J.M., Snape, S. Effect of Autism Portrayal in Television and Film Media on Viewers With Autism. J Autism Dev Disord (2026). https://doi.org/10.1007/s10803-026-07305-4.  Abstract

Purpose

Representation of people with autism in television and film media is increasing. However, inaccurate or stereotypical representations can be potentially harmful to the world’s view of people with autism. This has been widely explored in previous literature. However, less attention has been given to analysing how people with autism perceive these representations and the effect that these representations have on people with autism themselves. The current study therefore explored the perceptions of people with autism on representations of autism in television and film media and the effects that these representations have on them.

Methods

Semi-structured interviews were carried out with 10 participants with autism spectrum disorder (ASD) on this topic. Thematic analysis was then carried out.
Results

Thematic analysis identified three key themes: ‘neurotypical actors in autistic roles leads to feelings of discomfort’; ‘autism representation is well-meaning, but lazy’; and ‘harmful effect of the autistic savant’.
Conclusion

Overall, rather than empowering and including people with autism, the representations of autism in television and film media that they encountered were often found to be distressing. These findings have clear implications for how autism representation in television and film media could be improved.

From the article:

The current study aimed to directly elicit and analyse the views of people with autism on representations of autism in television and film media and to explore the effect that these representations have on them. Through interviews with people with ASD and subsequent thematic analysis three key themes were identified: neurotypical actors in autistic roles leads to feelings of discomfort; autism representation is well meaning, but lazy; and the harmful effect of the autistic savant.

The currents study’s findings that viewing neurotypical actors playing autistic characters was perceived negatively by the viewers with autism and as a missed opportunity for greater autistic representation furthers the idea that more consideration should be given to casting actors with autism in roles that portray autism. This is consistent with the suggestions of many critics of autism media (e.g. Bastow, 2021; O’Keeffe, 2017; Thomson, 2021) and supports the endorsement of casting actors with autism by autistic survey respondents in previous research by Orm et al. (2023). The current study’s findings further expand on these ideas, by suggesting that a clear underlying reason for viewers with autism’s rejection of neurotypical actors playing autistic characters may be that viewing this can cause significant discomfort in viewers with autism. Some may even view these representations as offensive. Mimicking autism related behaviours, such as stimming by these non-autistic actors was seen to be particularly discomforting to the viewers with autism, which supports suggestions that seeing this on screen can be perceived as harmful and a mockery of those with autism (e.g. Draaisma, 2009; Brady & Cardin, 2021).

The current study’s finding that viewers with autism felt that the depictions of autistic characters in television shows and films tended to be somewhat lazy, relying on stereotypical representations supports the claims of critics that media portrayals of autism are often stereotypical (e.g. Nordahl-Hansen, 2017; Lee & Deng, 2020; Ressa, 2021). Stereotypical representations may feed into the potential association between how autism is represented in the media and stigma (e.g. Broderick, 2010; Holton, 2013). The current study also highlights that in addition to the lasting societal impact that inaccurate information and poor portrayals of autism can have (Brede et al., 2017; Black et al., 2020) these stereotypical or negative representations can potentially create unease or even anger in viewers with autism. Therefore, the rejection of stereotypical representations of autism by viewers with autism may be motivated not only by a desire to see accurate representations, but also by the discomfort that inaccurate representations provoke within them. Viewing these inaccurate portrayals could have potential effects on the individual’s sense of self, as what they are seeing on screen is supposedly a representation of the group that they belong to. Where the focus is on negative depictions of autism this may even affect the individual's mental health (Cage et al., 2018).

Additionally, the current study’s findings that viewers with autism feel that the frequent featuring of the ‘autistic savant’ stereotype is not representative of people with autism supports previous research which highlights its overuse (e.g. Anjay et al., 2011). This also further validates criticism of one of the earliest representations of autism in film Rain Man (Levinson, 1988) for its stereotypical focus on the ‘autistic savant’ trope (Hannam, 2014). In addition, the current study expands upon the overuse of the ‘autistic savant’ stereotype by highlighting the potential effect that the overuse of this trope can have. Specifically, it can lead to the unrealistic expectation in others that all people that they encounter with autism will essentially be geniuses. This can lead to confusion in individuals with autism when they encounter people who have formed this view, as they may not understand why this expectation is being placed upon them. When they are subsequently unable to live up to this unrealistic expectation they may be left feeling negatively about themselves or may even not understand why they are not able to do the things that they see autistic characters do in television and film media.


 

Saturday, March 28, 2026

Good News: RFK Jr. Hits Speedbumps


Sheryl Gay Stolberg at NYT:
A string of developments over the past several weeks have put Mr. Kennedy’s vaccine agenda at risk. The confirmation of Dr. Casey Means, President Trump’s nominee for surgeon general, is stalled on Capitol Hill, where three Republicans on the Senate Health Committee, including its chairman, have expressed concern about her views on vaccines.

On Thursday, Mr. Trump missed a deadline to nominate a permanent director for the Centers for Disease Control and Prevention, leaving the agency officially leaderless. The White House is trying to find someone who fits with Mr. Kennedy’s broader health agenda but whose views of vaccines are conventional enough to win Senate confirmation.

Last week, a federal judge blocked Mr. Kennedy’s changes to the childhood vaccine schedule. And on Wednesday, Dr. Jay Bhattacharya, who is running the C.D.C. even though his time as acting director has expired, made the new normal clear.
“I think it is vital that every kid in this country get the measles vaccine — absolutely vital,” he said, according to a recording obtained by The New York Times, adding, “Bobby’s fine with me saying that.”
...

Polls now show that Mr. Kennedy’s vaccine agenda is a dud, unpopular even with Republicans. And that has created discomfort inside the White House, which has made clear its desire for Mr. Kennedy to downplay talk of vaccines while emphasizing his more popular healthy-eating agenda.
“Our poll highlights strong bipartisan support for routine childhood vaccines in the nation’s most competitive House districts, with majorities across political affiliations acknowledging their benefits and safety,” the Republican pollsters Tony Fabrizio and Bob Ward reported in December.

They added that although the Make American Healthy Again agenda was “broadly popular” regarding food and agriculture, “vaccine skepticism stands as an outlier, rejected by most voters even within the MAHA movement.”

 

Friday, March 27, 2026

1,575 Measles Cases

 In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread   Examples include measlesCOVID, flu, and polio.  A top antivaxxer is HHS Secretary RFK JrHe is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.


As of March 26, 2026, 1,575 confirmed* measles cases were reported in the United States in 2026. Among these, 1,566 measles cases were reported by 32 jurisdictions: Alaska, Arizona, California, Colorado, Florida, Georgia, Idaho, Illinois, Kentucky, Maine, Massachusetts, Michigan, Minnesota, Missouri, Nebraska, New Mexico, New York City, New York State, North Carolina, North Dakota, Ohio, Oklahoma, Oregon, Pennsylvania, South Carolina, South Dakota, Texas, Utah, Vermont, Virginia, Washington, and Wisconsin. A total of 9 measles cases were reported among international visitors to the United States.

There have been 16 new outbreaks** reported in 2026, and 94% of confirmed cases (1,483 of 1,575) are outbreak-associated (359 from outbreaks starting in 2026 and 1,124 from outbreaks that started in 2025).