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Saturday, November 22, 2025

RFK Jr Admits He Ordered CDC to Change Language on Vaccines and Autism

Sheryl Gay Stolberg at NYT:
Health Secretary Robert F. Kennedy Jr. said in an interview that he personally instructed the Centers for Disease Control and Prevention to abandon its longstanding position that vaccines do not cause autism — a move that underscores his determination to challenge scientific orthodoxy and bend the health department to his will.

In an interview on Thursday explaining why the C.D.C. website now says the claim that vaccines do not cause autism is not “evidence-based,” Mr. Kennedy acknowledged that large-scale epidemiological studies of the measles, mumps and rubella vaccine had found no link to autism, and that studies of the mercury-based preservative thimerosal had also shown no link.

But he cited gaps in vaccine safety science. He said he ordered the C.D.C. to change its guidance in part because high-quality large studies had not been conducted to examine a potential link between autism and other shots given in the first year of life. Those include the hepatitis B vaccine and a combination shot that protects against diphtheria, tetanus and pertussis, commonly known as whooping cough.

In his view, sweeping statements like “vaccines don’t cause autism” are unproven, and have been deployed by public health leaders who want to ease parents’ fears. He said he is not saying vaccines cause autism; he is simply saying there is no proof that they don’t.

Jessica McDonald and Kate Yandell at FactCheck.org:

“This is absolute insanity and a bizarre moving of the goalposts,” David S. Mandell, a psychiatry professor at the University of Pennsylvania Perelman School of Medicine and director of the Penn Center for Mental Health, told us via email. “As any scientist knows, you can’t ‘prove’ the lack of association. You conduct related studies, over and over, until the bulk of evidence finds no association.”

He added: The “CDC page is the equivalent of ‘you haven’t proven that ghosts don’t exist’ or perhaps more to the point, ‘you haven’t proven that driving during pregnancy doesn’t cause autism, so pregnant women should stop driving.’”

As Children’s Hospital of Philadelphia pediatrician and vaccine expert Dr. Paul Offit told us in a phone interview and has explained in a Substack post, scientists can’t ever prove a negative. In this way, he said, the webpage is taking advantage of a technicality of the scientific method, even though overwhelming evidence shows no link between vaccines and autism.

 

Friday, November 21, 2025

Autism and Health Organizations Denounce the Lies on the CDC Website

In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread   Examples include measlesCOVID, flu, and polio.  A top antivaxxer is HHS Secretary RFK JrHe is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.

He has now hijacked the CDC website.

Autistic Self Advocacy Network:

Yesterday, the Centers for Disease Control radically rewrote a website addressing false claims linking vaccines to autism. Previously, the CDC had correctly stated that a strong scientific consensus has concluded that vaccines are not associated with autism. The website now falsely claims that this statement is “not evidence-based” and that “studies supporting a link between vaccines and autism have been ignored by health authorities”. These are lies.

A statement from the American Public Health Association and other groups, including the Autism Society:

Our organizations, representing autistic individuals, their families, medical professionals and public health workers, are alarmed that the Centers for Disease Control and Prevention is promoting the outdated, disproven idea that vaccines cause autism.

Medical researchers across the globe have spent more than 25 years thoroughly studying this claim. All have come to the same conclusion: Vaccines are not linked to autism.

This false rumor distracts from pressing, urgent issues in children’s health. Amplifying this claim and encouraging unnecessary investigations only worsens parents’ fears; it will not lead to better therapies, improved support for caregiving families, or changes in health care, education, and society in ways that would help children with autism thrive. Rather than devoting needed resources right now to support people with autism and their families in every community, our taxpayer-funded health agencies are using public resources to spread harmful rumors. Autistic people are valued members of society and, like all of us, deserve research that helps health care and other systems address genuine needs. 

Today, our organizations reject this latest attempt to create fear around routine childhood immunizations. Vaccines rank among our greatest medical success stories. Thanks to vaccines, serious diseases that once made thousands sick every year and caused life-long health issues have become rare. We cannot risk losing this progress. Together, we call on the CDC to return to its long history of promoting evidence-based information in the service of protecting the health and well-being of all Americans
 Autism Speaks:

As an organization long invested in rigorous autism research and in supporting autistic people and their families, we believe this change undermines decades of clear scientific consensus. More than 20 years of high-quality research involving millions of children has demonstrated no causal link between vaccines and autism. The few studies that have implied otherwise are extremely limited, methodologically flawed, and have not been reproducible.

Two of the changes are especially concerning:
  • It dismisses robust, established evidence. The updated CDC page elevates weak, outdated studies, such as a 20-year-old parent survey of 77 respondents. These highlighted studies do not meaningfully challenge the overwhelming body of research on autism.
  • It relies on long-discredited correlations.
The page repeats the claim that autism prevalence “correlates” with the rise in childhood vaccines. This does not mean causation, and this argument has been repeatedly debunked.

Autism Science Foundation:

We are appalled to find that the content on the CDC webpage “Autism and Vaccines” has been changed and distorted, and is now filled with anti-vaccine rhetoric and outright lies about vaccines and autism. The CDC’s previous science and evidence-based website has been replaced with misinformation and now actually contradicts the best available science. The new statement on the site that says ““vaccines do not cause autism” is not an evidence-based claim” shows a lack of understanding of the term “evidence”.

Thursday, November 20, 2025

CDC Website Now Includes Lies About Vaccines

In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread   Examples include measlesCOVID, flu, and polio.  A top antivaxxer is HHS Secretary RFK JrHe is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.



Brenda Goodman at CNN:
Scientific information on the US Centers for Disease Control and Prevention’s website was replaced on Wednesday with anti-vaccine talking points that don’t rule out a link between vaccines and autism, despite an abundance of evidence that there’s no connection.

Bullet points on the top of the page now state that “vaccines do not cause autism is not an evidence-based claim” because studies have not ruled out the possibility that infant vaccines cause autism. However, the preponderance of scientific evidence shows this is not true, according to a position statement from the Autism Science Foundation.

“The science is clear that vaccines do not cause autism. No environmental factor has been better studied as a potential cause of autism than vaccines. This includes vaccine ingredients as well as the body’s response to vaccines,” the Autism Science Foundation said in a statement on Thursday.

Other CDC bullets say studies supporting a link between vaccines and autism have been ignored by health authorities. This, too, is not true. Studies showing a connection between vaccines and autism have proven to be fraudulent or have been poorly done or biased. There are many well done, credible studies that find no such relationship.

The page also says HHS has launched a comprehensive assessment of the causes of autism, including investigations on plausible biologic mechanisms and potential causal links.

The main heading on the page states “Vaccines do not cause Autism,” but now has an asterisk that directs readers to a footnote: “The header “Vaccines do not cause autism” has not been removed due to an agreement with the chair of the U.S. Senate Health, Education, Labor, and Pensions Committee that it would remain on the CDC website.”

The footnote seems to refer to a commitment by US Health and Human Services Secretary Robert F. Kennedy Jr. to Sen. Bill Cassidy, a physician and Republican from Louisiana, during his confirmation process that language on the CDC website “pointing out that vaccines do not cause autism” would not be removed. Cassidy described the promise in a speech in which he explained his support for Kennedy, a longtime anti-vaccine activist.

HHS spokesman Andrew Nixon said Thursday, “We are updating the CDC’s website to reflect gold standard, evidence-based science.”

In a post on social media late Wednesday night, Dr. Demetre Daskalakis, who recently resigned as director of the CDC’s National Center on Immunization and Respiratory Diseases, called the changes “a national embarrassment.”

Wednesday, November 19, 2025

Gutting OCR Will Worsen Inequality


Lauren Coffey at EdSurge:
“Parents, educators and state administrators rely on ED [the Education Department] for a lot of help and technical assistance in making special education work,” she says. At the state level, “a lot are saying, ‘Where do we get the guidance to follow the law?’ [ED officials] have institutional knowledge you can't read from a textbook.”

With that confusion comes more complaints filed. Often, families file complaints within the school district or the state, before going to the federal Office for Civil Rights. They typically stem from violations of Section 504 of the Rehabilitation Act of 1973, which guarantees individuals with disabilities have equal opportunities and rights, and the IDEA Act, which guarantees a “free appropriate public education to eligible children with disabilities.” A complaint could cover anything from a school not having wheelchair accessibility to a teacher not giving a student extra time to take an exam.

According to data from the Department of Education , over one-third of the complaints OCR handles are related to disabilities. That office was largely gutted in February and again in October. Hill, an attorney, expects parents will begin turning toward private lawyers as OCR will be unable to keep up with the deluge of complaints.

“I think there will be more problems; there just won't be anywhere to go with them,” Hill, a partner at law firm Brown, Goldstein and Levy, says. “Parents and kids will have complaints they need to file, but nowhere to file them. So, they'll go to private lawyers. But there are not enough of us, so people will end up having their educational rights taken away.”

Hiring private lawyers also requires time and money many do not have.

“Parents are taking out second mortgages on their homes just to get the rights for the child, but they can also take off from work to prep for the hearing and attend the hearing,” says David Bateman, a special education consultant and retired professor of special education at Shippensburg University. “Most don't have the money, nor flexibility
.”

Tuesday, November 18, 2025

AI and IEP

In The Politics of Autism, I write about social servicesspecial education, and the Individuals with Disabilities Education Act. 

Ariana Aboulafia at the Center for Democracy and Technology:

The use of artificial intelligence (AI) in schools is becoming more commonplace, including the use of generative AI models to develop individualized education programs (IEPs) for disabled students. A recent poll from the Center for Democracy & Technology (CDT) found that 57% of teachers reported using AI to develop an IEP or 504 plan during the 2024-2025 school year — an 18 point increase from the previous school year. But there are legal concerns with using these tools, including compliance with student privacy laws (like the Family Educational Rights and Privacy Act (FERPA)) and disability rights laws (like the Individuals with Disabilities Education Act (IDEA)).

This brief provides background information on how AI plays a role in IEP development, highlighting the importance of ensuring that IEPs are properly individualized and accurate for disabled students. It analyzes the benefits and legal risks of using AI in IEP development, and discusses other concerns including accuracy and bias. Finally, it provides recommendations for teachers, school and education administrators, disabled community members, and tool developers, notably:
  • Teachers should be mindful of whether their school has an agreement with a particular AI tool vendor — if not, teachers should not input any personally identifiable information into AI tools, and should exercise caution around use in general.
  • Schools and school districts should engage in proactive communication to students and parents regarding use of AI tools in IEP development; provide trainings to teachers; create policies for the use of AI tools in IEP development that includes a requirement for human oversight; and consult compliance offices regarding any legal risks of using AI in the IEP development process, including risks under IDEA and FERPA.
  • Disability community members should raise awareness to others in the community on the use of AI tools in the IEP development process, educate themselves and others on their rights under statutes like IDEA and FERPA, and take advantage of opportunities to voice concerns over the uses of these tools, including at school board meetings.
  • Developers should conduct pre-and-post deployment audits of their tools, prioritize privacy, create policies that prohibit their models from soliciting personally identifiable information from users, ensure disabled people are included in their development process, and be transparent about their data practices.

By incorporating these recommendations, stakeholders can work together to ensure that any use of AI tools in the IEP development process is done in ways that are legally compliant, privacy protective, and respectful of the rights and needs of disabled students.

Read the full report.

Monday, November 17, 2025

Early Start in Jeopardy

In The Politics of Autism, I discuss services for people with disabilities.

Kelly Keck at CalMatters:

This summer, Congress passed the One Big Beautiful Bill, extending tax cuts but slashing billions from Medicaid. In California, federal Medicaid funds sustain the regional centers that coordinate Early Start services for infants and toddlers with — or at risk for — developmental delays.

With California facing a multibillion-dollar deficit, the future of such early interventions looks precarious. Losing federal support means the state must fill the funding gap or scale back, thus putting therapy, progress and hope at risk for countless children and families.

I’ve witnessed what happens when families lose access to care. When speech therapy disappears, a baby’s first words vanish into silence. When physical therapy stops, a toddler’s first steps may never come.

Early Start is not a luxury; it’s a bridge from surviving to thriving. When that connection is frayed, a child’s trajectory is altered, sometimes irreversibly.

The Department of Developmental Services has already warned that its caseloads are surging as staffing shortages worsen. Federal cuts will only amplify this with fewer therapists, longer waitlists and children stranded during the most critical period of their brain development.

Every week’s delay, every family told to “wait and see,” means consequences that may never be undone, developmental windows that will not reopen.

Sunday, November 16, 2025

Measles November

In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread   Examples include measlesCOVID, flu, and polio.  A top antivaxxer is HHS Secretary RFK JrHe is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.

Center for Infectious Disease Research and Policy at the U of Minnesota:
The number of measles cases nationwide has risen by 42 the in past week, the Centers for Disease Control and Prevention (CDC) reported today in its latest update. There are now 1,723 confirmed measles cases this year, reported by 43 jurisdictions.

Eighty-seven percent of measles cases are outbreak-associated, and there have been 45 US outbreaks in 2025. Among measles patients, 92% have been unvaccinated or had an unknown vaccine status. Only 4% have received both doses of measles-containing vaccine.

Last year the United States had 285 measles cases. US measles activity is the highest it has been since measles was declared eliminated in the country in 2000.


Saturday, November 15, 2025

Children's Health Defense's Wacko Conference

In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread   Examples include measlesCOVID, flu, and polio.  A top antivaxxer is HHS Secretary RFK JrHe is part of the "Disinformation Dozen." He helped cause a deadly 2019 measles outbreak in Samoa.

 At The Atlantic, Tom Bartlett reports on the annual conference of Children’s Health Defense, RFK Jr's antivax organization.

They want Kennedy to investigate their belief that the government supposedly colluded with Big Pharma to hide the harms of vaccination. In a session on Saturday afternoon, former Republican Representative Dave Weldon, whose nomination to become CDC director was withdrawn in March amid outcry over his criticism of immunizations, called for the creation of an independent body to investigate vaccine-safety data and report only to Kennedy and President Donald Trump. “If it’s in the hands of the CDC, you’ll never get the answers you need,” he told the crowd. During a session titled “The Enduring Nightmare of COVID mRNA Technology,” Sherri Tenpenny, a veteran anti-vaccine activist who once said that one goal of COVID vaccination was to turn people into “transhumanist cyborgs,” called for the mRNA-based vaccines to be taken off the market: “It’s just the next level of atrocity of how they want to damage us and make us customers for life.” Mark Gorton, the founder of LimeWire who is now president of the MAHA Institute, a think tank, favors stopping routine shots altogether until they’ve undergone further testing. “The medical establishment will scream that plagues will sweep across the land,” he said from the stage. “We need to counter that their plague of vaccine poisoning is already amongst us.”

As noted before, the antivax movment overlaps with right-wing conspiracy theory.

The forces aligned against Kennedy, everyone at the conference seemed to agree, are formidable. Leslie Manookian, the president of the Health Freedom Defense Fund and the author of a recently passed Idaho law that makes vaccine mandates illegal, railed against the “pit of vipers” that Kennedy must deal with in Washington. In a session titled “Sustaining the Promise of Freedom Through Action,” the crowd applauded when Joseph Ladapo, Florida’s surgeon general, announced that the reporters from The Atlantic and The Washington Post in the room “represent forces who are working toward the enslavement of humanity”—though he allowed that he had “nothing against them.” (As The Atlantic’s editor in chief, Jeffrey Goldberg, told the Post, “In fact, The Atlantic is not working towards the enslavement of humanity, but I appreciate his concern.”) Ladapo spent most of his speech expounding on his experience with psychotherapy and his relationship with his wife. The day after Brand declined to speak with me and called me a Nazi, Alex Jones posted a two-hour interview in which a bathrobe-clad Brand dismissed the allegations against him as a “governmental and media operation.”

Friday, November 14, 2025

Some Education Staffers Are Back. Don't Get Your Hopes Up.

 In The Politics of Autism, I discuss the issue's role in presidential politics. Many posts have discussed Trump's bad record on disability issues. As his words and actions have shown, he despises Americans with disabilitiesHe told his nephew Fred that severely disabled people -- such as Fred's son -- should "just die."

Project 2025 proposed to turn IDEA into a "no strings" block grant, effectively gutting the law and destroying protections that disability families have long relied upon. During the 2024 race, Trump denied any connection to the project, but now he proclaims it, praising OMB director Russ Vought "of Project 2025 fame."

Trump and Vought are now accomplishing their goal of ravaging the law. Instead of shifting it to a block grant, they tried firing most of the staff who enforce it. 

The deal Congress reached to re-open the federal government requires the Trump administration to reinstate federal workers who were fired in October, including those charged with overseeing the nation's special education laws. But it's not clear how long they'll be back.

As NPR has reported, the Office for Special Education and Rehabilitative Services (OSERS) inside the U.S. Department of Education is the central nervous system for programs that support students with disabilities. It not only offers guidance to families but also oversees state compliance with the Individuals with Disabilities Education Act (IDEA).

OSERS can't do its job without staff, and, according to a new Education Department filing, the office lost 121 of its 135 employees in the October reduction-in-force. That matters because, while Wednesday's funding agreement will return those workers to "employment status" as of Sept. 30, there appears to be little protecting them after Jan. 30, when that provision expires.

 "We are concerned special education will cease to exist," says Jacqueline Rodriguez, CEO of the National Center for Learning Disabilities. ... If OSERS stays a shadow of its former self, Rodriguez says, "the only conclusion that we can draw is that it is an intentional dismantling of the entire system of special education."
The Office for Civil Rights has also taken a big hit.
OCR lost 299 staffers after the March reduction-in-force but, because of a lawsuit, most (247) remain on temporary, paid administrative leave. Another 137 were cut in the October reduction-in-force, which has been paused by a federal judge. Under the new government funding agreement, those 137 staffers should be reinstated, at least until Jan. 30.

By the department's own numbers, that means just 62 staffers of OCR's current 446 employees have not received RIF notices. That's roughly 10% of the office's 600-plus headcount in January, when the second Trump administration began.

OCR and OSERS are both mandated by federal law.

"I've got to say, I'm just shocked that they can destroy an entire unit of an organization that's created by statute," said R. Shep Melnick, a professor of American politics at Boston College who has been writing about OCR for decades.




Thursday, November 13, 2025

Acting IG at Education

  In The Politics of Autism, I discuss the issue's role in presidential politics. Many posts have discussed Trump's bad record on disability issues. As his words and actions have shown, he despises Americans with disabilitiesHe told his nephew Fred that severely disabled people -- such as Fred's son -- should "just die."

Project 2025 proposed to turn IDEA into a "no strings" block grant, effectively gutting the law and destroying protections that disability families have long relied upon. During the 2024 race, Trump denied any connection to the project, but now he proclaims it, praising OMB director Russ Vought "of Project 2025 fame."

Trump and Vought are now accomplishing their goal of ravaging the law. Instead of shifting it to a block grant, they are firing most of the staff who enforce it.  A judge has temporarily paused the attack, but the administration will likely find ways to ignore or circumvent the order.


Sean Michael Newhouse at Government Executive:
The acting inspector general at the Education Department is being replaced for the second time this year, and the watchdog’s new leader is an IG official who seems to have shared social media posts supporting Donald Trump.

Mark Priebe will be the new acting Education IG, according to a 30-day notice sent to Congress on Nov. 7. He has been the director of the Non-Federal Audit Team at the Education IG office since 2017 and previously worked as an auditor at the Housing and Urban Development Department and Federal Energy Regulatory Commission, according to his LinkedIn.

The president is permitted to replace an acting IG, but he is limited to selecting an individual who is currently working in an IG office.

An X account that appears to belong to Priebe occasionally shared messages from other accounts that back Trump including:



The Education IG position opened up after Trump fired Sandra Bruce in January along with 16 other agency watchdogs. Deputy Education IG René Rocque then became acting IG, but she was replaced this summer after notifying Congress that officials were stonewalling an investigation into staff reductions that have halved the department’s workforce.


Wednesday, November 12, 2025

Nature Medicine: Autistic People Deserve Science-Based Policy

 number oposts discussed Trump's support for discredited notions about autism. The Sept 22 White House news conference was a firehose of lies. Last month, he posted an unfounded warning about Tylenol RFK then tiptoed away from the idea that it definitely causes autism.

Recent public discourse in the USA has been marred by the propagation of claims about the causes of autism that do not reflect current scientific consensus and disregard an extensive research body indicating that there is no single root cause of autism. US Secretary of Health and Human Services Robert F. Kennedy Jr. has made identifying the causes of autism a focal point1 of his tenure. While understanding the origins of autism is important, the approach must be grounded in rigorous, unbiased science and informed by the lived experiences of people with autism and their families. So far, this standard does not seem to have been met.

Within the first 10 months of the current administration, senior officials have advanced a series of assertions linking autism to childhood vaccines, prenatal acetaminophen2 (Tylenol) use, and even circumcision3. These claims reflect a broader pattern of science communication that prioritizes ideology over evidence, often relying on selective data interpretation4 while disregarding the broader scientific literature. This approach marginalizes experts, advocacy organizations, and — most importantly — people with autism and their families.

The consequences of such rhetoric were immediate and far-reaching. A national poll conducted shortly after a press conference in which Secretary Kennedy and President Trump alleged a causal link between prenatal Tylenol use and autism found that 77% of respondents had been exposed to the claim5. Alarmingly, 60% expressed uncertainty about its validity. This confusion is not benign. Acetaminophen is considered the safest choice of analgesic and antipyretic for use during pregnancy; systematically discouraging its use could endanger maternal and fetal health.

Moreover, the language employed in these public statements risks perpetuating stigma. Framing autism as a condition to be ‘cured’ or attributing blame to parents6 reinforces harmful stereotypes and undermines the dignity of people with autism. It is imperative that public communication about autism be accurate, respectful and reflective of neurodevelopmental diversity.

While understanding autism’s causes remains a legitimate scientific goal, it must not eclipse the urgent need to improve the quality of life for people with autism across their lifespan. The US National Institutes of Health’s Autism Data Science Initiative, launched earlier this year with over $50 million in funding across 13 projects, focuses mainly on early-life exposures and the perceived rise in autism prevalence. Although such efforts are valuable, they must be complemented by research into aging, comorbidities and service delivery. Notably, the 2020 Interagency Autism Coordinating Committee report found that less than 13% of autism research funding was allocated to lifespan issues, services and support — an imbalance that must be urgently addressed.

Equally important is the inclusion of people with autism in shaping the research agenda. Participatory research models that prioritize co-creation and community engagement are more likely to yield findings that translate into meaningful improvements in care and policy. Yet, as of this writing, the Interagency Autism Coordinating Committee — the only federal advisory body with representation from the autism community — has not publicly announced a convening since the start of the current administration. This absence raises concerns about the inclusivity and legitimacy of recent policy and funding decisions.

Responsibility for restoring scientific integrity in autism research and policy must be shared. Advocacy organizations such as the Autistic Self Advocacy Network, the Autism Society and the Academic Autism Spectrum Partnership in Research and Education have taken commendable steps to counter misinformation and promote community-engaged research. 
References
  1. Seitz, A. PBS News https://go.nature.com/49E5GKv (10 April 2025).
  2. Hamilton, J. Noguchi, Y. & Greenfieldboyce, N. NPR https://go.nature.com/4qJlEch (22 September 2025).
  3. Beaumont, T. & Ungar, L. PBS News https://go.nature.com/3LAfWcE (10 October 2025).
  4. FactCheck.org. Annenberg Public Policy Center https://go.nature.com/47nNCTu (3 February 2025).
  5. Shutt, J. The Highland County Press https://go.nature.com/4oGeTGn (23 October 2025).
  6. Kim, J. NPR https://go.nature.com/4nGKZRB (26 September 2025).



 

Monday, November 10, 2025

Lit Review Undercut Tylenol Accusation

 number oposts discussed Trump's support for discredited notions about autism The Sept 22 White House news conference was a firehose of lies. Last month, he posted an unfounded warning about Tylenol RFK then tiptoed away from the idea that it definitely causes autism.

Medical Xpress:
Existing evidence does not clearly link paracetamol (acetaminophen) use during pregnancy with autism or ADHD in children, finds an in-depth evidence review published by The BMJ today, in direct response to recent announcements around the safety of using paracetamol in pregnancy.

The researchers say confidence in the findings of existing evidence reviews and studies on this topic is low to critically low, and suggest that any apparent effect seen in previous studies may be driven by shared genetic and environmental factors within families.

Regulatory bodies, clinicians, pregnant women, parents, and those affected by autism and ADHD should be informed about the poor quality of the existing reviews and women should be advised to take paracetamol when needed to treat pain and fever in pregnancy, they add.

Paracetamol (acetaminophen) is the recommended treatment for pain and fever in pregnancy and is considered safe by regulatory agencies worldwide.

Existing systematic reviews on this topic vary in quality, and studies that do not adjust for important factors shared by families or parents' health and lifestyle cannot accurately estimate the effects of exposure to paracetamol before birth on neurodevelopment in babies.

To address this uncertainty, researchers carried out an umbrella review (a high-level evidence summary) of systematic reviews to assess the overall quality and validity of existing evidence and the strength of association between paracetamol use during pregnancy and the risks of autism or ADHD in offspring.
...
They conclude, "The current evidence base is insufficient to definitively link in utero exposure to paracetamol with autism and ADHD in childhood. High quality studies that control for familial and unmeasured confounders can help improve evidence on the timing and duration of paracetamol exposure, and for other child neurodevelopmental outcomes."


Sunday, November 9, 2025

Literature on Autism and Aging

In The Politics of Autism, I write about the everyday struggles facing autistic people and their families.  The struggles of autistic adults have not received enough scholarly attention.

Mokhwelepa, L.W., Sumbane, G.O. & Ngwenya, M.W. The dynamic trajectory of autistic life and its changing challenges: a scoping review. BMC Psychiatry 25, 769 (2025). https://doi.org/10.1186/s12888-025-07212-5
Abstract

Background

There is a noticeable knowledge vacuum on the ways in which autism interacts with the difficulties associated with aging, even though in recent decades there has been a growing recognition of the different needs and experiences of those on the autistic spectrum. Importantly, experiences across earlier life stages such as youth and young adulthood also influence later outcomes and warrant consideration within this dynamic trajectory, meaning the ongoing and evolving developmental path individuals follow throughout life.
Objectives

This study aimed to review the existing literature on the unique needs, challenges, and experiences of autistic adults as they progress into later stages of life.
Methodology

The scoping review was carried out by following a structure that included defining the research topic, finding pertinent studies, choosing studies, charting data, and ultimately compiling, summarizing, and synthesizing the findings, the scoping review was carried out. PubMed, PsycINFO, Google Scholar, and ScienceDirect are the databases that were used to perform an exhaustive search of the literature from 2010 to 2023. Studies were screened for inclusion based on predefined criteria.
Results

Despite an initially large dataset, only a limited number of studies directly addressed the intersection of autism and aging in sufficient depth. This review yielded only two themes: (1) Challenges experienced by adults with autism when aging; (2) interventions and support strategies.
Conclusion

The important need for greater comprehension of the relationship between autism and aging was highlighted by this study. It exposed a wide range of difficulties that autistic adults encounter as they age, such as inequalities in healthcare and problems integrating into society. This review will contribute to a deeper understanding by highlighting the evolving challenges, unmet needs, and support mechanisms required by autistic adults as they age, offering insights for research, policy, and practice.